Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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SandraEJonas 06/26/2011

How many of us has had the MuSK Antibodie Blood test????? Please let me know how many are you out there....there are only about 300 of us of of the 40,000 diagnosed....I of couse am one of them, lucky me! :)

becwithkids 06/27/2011

I will know within the next couple of days... MuSK is being tested for @ the lab right now. I had the blood drawn on Friday. How long does the MuSK test take to get results? I have read that it takes a long time, but my new Doc said he will have the results back "in a couple of days.

SandraEJonas 06/27/2011

Are you getting the Titer Test along with the MuSK? MuSK usually takes a week or so. It is sent to Woster, MA. Athena Diag. is the lab, it is the sister lab to Quest....

becwithkids 06/27/2011

I don't know.
I just read my lab request from the neurologist and it says "Acetylcholine receptor antibodies, binding, blocking and modulating." and the next line is "MUSK antibody" (musk was all caps) and the third line reads "IND: generalized weakness".
He said it would be back "in a couple of days" and has me scheduled for an EMG test on Thursday, but "We will only do it if the blood work is negative" .
I am in Utah. Hoping they run the tests correctly!!!
Sister lab to Quest? I don't know what that means.
Thank you for being so informed on this and allowing me to ask these questions!

SandraEJonas 06/27/2011

If you go on the Athena Diag web site and go to Myasthenia Gravis blood tests you will see the two tests, 482 and 483. I have had both.

becwithkids 06/27/2011

I just called the lab ;) and my modulating and MuSK are still pending... but my binding and blocking were zeros. She said that one test was "sent to Athena" So YEAH! Sounds like they are running things correctly! Thank you for this information!

becwithkids 06/27/2011

I called Athena Diagnostic labs... they are running 482.
Aren't I just a squeaky little wheel this morning! ;)

deleted_user 06/27/2011

Over the years, I've seen a lot of interest in this MuSK antibody thing. I don't know if I was ever tested for it or of what benefit it might be. I have had severe generalized MG for years - now controlled medically - and wonder why anything would have been different if we knew I was MuSK positive or MuSK negative. Curious minds...

Curt

Rebecca-Medina 06/28/2011

I have had a MuSK test. I am told that I am Musk Positive and my " number was 2,560. I was told that normal is 10 and under.

CarlyMichelle 06/19/2013

I am getting the MUSK test done tomorrow. Will let you know when I find out.

Carly

GreenMarie 06/20/2013

I was negative on the AChR test. My response to pyridostigmine was extremely positive. My neurologist said that he was not going to run the MUSK test since most people who are MUSK positive do not respond that positively to pyridostigmine.

I heard that the MUSK test is quite expensive. I would want it done tho if I thought I might have those antibodies. The neurologist said that all antibodies have not been researched as yet. There seems to be a lot more research needed.

I hope you get your results soon! Marie

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