Thanks Kerry,

I will check these out tonight.

Your posts and videos are so informative. Thanks for sharing.
I have some fasiculations though not to your or Ross' degree. It drives me crazy when it's active. It's amazing how you can actually see your muscles jump and move on video!

I am so sorry the loss of your good friend and mentor.

Was also saddened to read of another fellow MG'er lost. I followed Steven's MG story on the support site helped start.. I was a reader but rarely if any ever, a contributor (I know, hard to believe!). He was a warrior who fought the good fight while always lifting others.

Hugs,
sherry

Rest in Peace, Ken Haag.
Rest in Peace, Steven Taylor.

Kerry,
I am so sorry, you have lost these two good friends.
One - with MG as a contributing factor.
My sympathies to you, and to their families.

Looking at your blog, and videos.
- Ross

Thanks for you update. I look exactly the same except you are able to breathe a little better. You don't mention difficulty holding your head up in this video. To me, that's the major problem because the result of my inability to hold my head up is difficulty breathing, speaking, and swallowing. Incidentally, your voice sounds fine.

By the way, how much do the coins weigh? I want to see who's stronger.

Be well.

Marvin

Kerry, I am sorry - that PLEX is so hard on you.
I wish you could have PLEX treatment, more often.

Your blogs & videos are very instructive.
Maybe it's time - for more of us to blog, or to show videos of our conditions. (People like me.) To share with our MG buddies, to show symptoms to each other.
And also, maybe? To raise some public awareness.

Whew - have you ever seen Kerry's youtube video? Where he uses a needle, like a neurologist making a diagnosis; to show loss of sensitivity, on his limbs. This is a man with courage!

Kerry & I - do have - a similar package of symptoms. We use slightly different names for these symptoms, but we are only using names, as they are given to us, by our different doctors & different medical world.

The CFS that I have - is severe. (Yeah well, so what. Join the club, right?) My mind wants to say, ''the CFS is violent''.

Yet that is not what CFS looks like, to someone else, observing heavy-duty symptoms. With heavy-duty symptoms, the muscles in your limbs - fire so rapidly, that to an outside viewer, you have become paralyzed. You are a new citizen of pain-city, laid out like a log, unable to breathe, unable to swallow, unable to talk.

I take it back. Maybe videos aren't such a good idea!
- Ross

Ross. The Kerry with the needles is me. LOL.

So sorry to hear of your loss Kerry.

Thank you for your very informative videos and blog, they have helped me more than you know.

Larissa

Thank you for sharing! Really helpful - I definitely need to find the exercises that tip me off that I should have more plex - right now I have been using shortness of breath. This was awesome!
Also, very sorry about your loss!

So glad you share these with us. Thank you.
Deb

Kerry, I am so sorry for the here on earth loss of your mentor and your friend. I was shocked to hear of Steven Taylor's death. Like Sherry, I have followed but not participated much so I knew of him.

Your video of fasiculations is interesting. I also have fasciculations but not to the degree you do. Mine tend to be all over but more often in my arms and face. They are annoying but come and go thank goodness. I used to blame them on the mestinon but it has become obvious that mestinon is not the culprit.