Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Greetings Friends, starting a new list of MG specialists. Please share your neurologist's name, city/state, hospital and any bio/link. This is to help other suffers with this disease -especially since it is so difficult for some to get a diagnosis and enter treatment. Please feel free to share any other helpful practicitioners that you know of. Blessings to all. Maryam
Dr. Joon Moon @ OU Physicians in Oklahoma City, OK
https://www.oumedicine.com/neurology/meet-our-faculty/faculty/joon-shik-moon
Dr. Moon is an amazing neurologist. He listens to your needs and questions. He helps you come up with questions to ask him that you might not of thought of. He is open to your suggestions that have to do with your treatment protocol, which I found very refreshing! He specializes in neuromuscular disease - so that is his focus. The office staff is great as well.
https://weillcornell.org/mrubin
He understands that some patients are seronegative. So although he does the blood work, he is more interested in your symptoms. He's a 'if it walks like a duck' kinda guy. I love him. He's been great to me. I will ask him for info on colleagues in other states.
Sought second opinion from Dr. Gil Wolfe, Buffalo, NY - so happy we made the trip. He is top notch!