Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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mellywil 05/20/2012

I've seen some refer to Facebook & I think Facebook for MG, which one is this group using? Help me find it please. Thx MeLisa

Chroux 05/21/2012

Hi
Hope this link works

https://www.facebook.com/groups/163575350375713/

Regards

Christo

cgreens 05/21/2012

I don't think there is a particular group the people from this site are using. I belong to two different groups there. I quit being in a group originally. It was the largest myasthenia gravis group. I am now in one called myasthenia gravis flakes, and another recently added group, which may be a calmer version of the MG flakes group. They can get a bit rowdy and moody in there. There are probably several groups in all. Honestly, this one is enough for me. I don't take time to get into my two fb groups as often as here.

I post my thoughts on Facebook whether it be me commenting on someone else's status or myself just sharing what I am thinking or into at that moment.

I have been in this group since the start and have always come back here first.

Peace,

TJ

deleted_user 05/22/2012

I belong to the MG flakes on Facebook. It is interesting that TJ calls the group rowdy!! I do not enjoy that group. I find it depressing. Not sure why??? I no longer check it at all. Maybe someone who finds that group helpful could encourage me to stay with it. The daily strength group is so much more helpful, hopeful, informative, etc. I'm sticking with this group. However, I would encourage you to try the facebook group, you just might connect with someone or feel comfortable there.
Robin

cgreens 05/22/2012

Robin, I mentioned they were moody. I guess I was being polite. LOL
I think you described it a bit better in depressing. It seems to be a pity party there a lot. Some people really need support... People do suffer greatly, and it can be a real eye opener. I belong to another group also. I like it better having the individual friendships on facebook, and then I can share and get a better experience.

I share good news there and it seems to be well received. Seems people don't share good news enough.

txkiki53 05/22/2012

I was in the MG flakes group... It got where there were so many fights amoung each other it was not helpful to anyone so I took myself out of the group. Then there was one nans flakes or something along those lines at first it was calm then it got to be the same depressing so I am out of that one also.

it is really up to you but my heart belongs here...
Annette

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