Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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SandraEJonas 09/19/2011

is any one on the MG Face book page? It is also another great way to communicate......

deleted_user 09/19/2011

No but I would love to be, what is the link?

adamrach 09/19/2011

Yes there is a place on facebook called Myasthenia Gravis Flakes, we are a great group of people you will love all the info you can get from the group and we keep lively in there. you can look me up and message me that you want to be added to the group. Rachel Pegram

txkiki53 09/19/2011

yep I am there... try myasthenia gravis flakes

deleted_user 09/20/2011

Can someone pretty pretty please look me up and add me to the group, it's a private group so I can't join without an invite, you can look me up under Ashley Archuleta, or my e mail address AshleyJene1219@yahoo.com I can't link my FB with DS because I made them under different e mails lol.

DebbieF777 09/21/2011

I joined. Looks like a fun group

deleted_user 09/22/2011

I joined, thanks for letting us know about it.

deleted_user 09/23/2011

Can someone add me? I can't find it. I am Jennifer Fink Liberatore on FBook.

catladyme2 09/23/2011

I'm on. Some crazy fun people are on.

bweeds 09/23/2011

Being the cynical idealist that I am, I have grave doubts (paranoia?) about Facebook, all that data, where is it stored, who has access and how is it financed? Be very careful to use all the privacy settings that are in place, you may want to get a job, purchase insurance or long term care, take a trip (leaving your home unattended), etc. There is a lot of potential for mischief, criminal activity, and abuse. DS has some of those same risks, but you tend to control them a bit better and in this case, for me, the benefits are worth the risks. Have fun, but be careful. I don't expect to see you there and if your faces pop up in my email with an invitation to join, I am going to be really worried. b.

SandraEJonas 09/23/2011

I am glad everyone choose to go on! Alot of information that is good for us all....

SamiWells 09/23/2011

I joined today. My real name is Ann McEvan. I use SamiWells on message boards as most boards that I post on are Days of Our Lives related.

snowbeltfolkie 09/24/2011

I'm too mad at FB, right now! Too many unnecessary changes, certainly benefitting FB but not its users. (Considering dropping right off FB, altogether.)

billfig99 09/24/2011

I joined but dropped out after a while. I like this site better. Here talk is mostly about MG related issues, not like what we ate for lunch as the FB site was doing.

deleted_user 09/24/2011

I like using both sites. FB for a lighter side to life and DS for serious topics.

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