Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi All,
Although I deal with MG symptoms since last summer, I am new here.
First, I would like to thank you all for sharing your experiences. I found them very useful and educational. Until now I have never been seriously sick, so when I went to see a doctor I did not know how to behave or what to ask. Now I have some ammunition to shoot with :)
I'm 50 y/o. Started having double vision and been diagnosed with Ocular MG in August 2010 also, tested positive for antibodies in Aug 2010. CT for thymoma came negative. At first tried Mestinon (Pyridostigmine) 60mg every 8 hrs for couple of weeks - did not work for me at all. Changed doctor who put me on Prednison and that fixed my double vision and eyelid drooping for couple of months. Later my condition worsen again I found a neurologist who specializes in MG. Currently I take Prednison 20mg a day and Mestinon (Pyridostigmine) 60mg every 8 hrs. If my condition will get worse I can increase the Pyridostigmine by 15mg until I will be good again.
Reading your posts I noticed that you are mentioning Mestinon and Mestinon Timespam. What is the difference?
Thank you again and good day to all
Le
Although I deal with MG symptoms since last summer, I am new here.
First, I would like to thank you all for sharing your experiences. I found them very useful and educational. Until now I have never been seriously sick, so when I went to see a doctor I did not know how to behave or what to ask. Now I have some ammunition to shoot with :)
I'm 50 y/o. Started having double vision and been diagnosed with Ocular MG in August 2010 also, tested positive for antibodies in Aug 2010. CT for thymoma came negative. At first tried Mestinon (Pyridostigmine) 60mg every 8 hrs for couple of weeks - did not work for me at all. Changed doctor who put me on Prednison and that fixed my double vision and eyelid drooping for couple of months. Later my condition worsen again I found a neurologist who specializes in MG. Currently I take Prednison 20mg a day and Mestinon (Pyridostigmine) 60mg every 8 hrs. If my condition will get worse I can increase the Pyridostigmine by 15mg until I will be good again.
Reading your posts I noticed that you are mentioning Mestinon and Mestinon Timespam. What is the difference?
Thank you again and good day to all
Le
http://mestinon.com/info.jspf
Timespan is a timed release(180MG extended version) used a lot for bedtime to help with symptoms upon waking up. I happen to take it during the day also, as do others as well. Label says do not take it more than every six hours, but can last longer. Regular mestinon is an instant release(60MG) isn't to be taken more(120MG at once) than every four hours, generally speaking and in my neuros/my own opinion. They both take about the same time to start acting, but one will last longer and remain in your system longer.
Check the website and you can call them too.
It was very helpful. Next week I will see my neuro since my eyes start to bother me again also, my neck starts acting out. I am afraid that I am moving from ocular mg to the more general.
I am glad that I found this group. I helps me keep my spirits up.
I feel for all of you and believe that the good days are coming upon us.
Le