Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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mestinon- day 1

weathergrl
weathergrl
Today is day one for me taking mestinon. Can I just say WOW!??!?!
Yesterday my fatigue almost kept me from going to work. Today I have tons of energy.

Is this normal for taking mestinon or some sort of temporary high that will not happen after I have been taking it for awhile?
cgreens
cgreens
As far as MG goes, It is a good thing that you have a good reaction to the mestinon.

Are you taking any treatment for your MG?

You now must pay attention to how much mestinon you need to have that better quality of life. Chances are, you will not be able to stay on mestinon only.
deleted_user
deleted_user
Wow is the good answer. Now, if you haven't already, you should be able to proceed with treatment! Glad you had a good day.
newmugg
newmugg
Good news! Now the trick is to not over-do.
~sherry
carolela
carolela
The first time I took Mestinon it was like a miracle!!! Unfortunatly I had to take more and more. Hopefully it will be better for you!!
becwithkids
becwithkids
I don't feel the amazing differences (the ones that make you so grateful you cry happy tears all day) anymore. But, I think that initial relief is the wow factor. It still works wonderfully for me to keep symptoms at bay and I still love it!
So happy that you had the WOW factor!
Love, Becca
annkemp
annkemp
It definately is our drug of choice.
When I first took it...I knew it was my new candy.
So happy for you. It defiantely is a gift.
Now you just have to keep in balance. It helps, but we can still pay if we over do.
Enjoy
Ann
deleted_user
deleted_user
Good for you!

Mestinon does help most of us with MG. In my case it was great at first but as my MG progressed rapidly from diagnosis through the first month I needed more and more and the side effects of muscle cramps, gas, diarrhea and so on got more annoying (but worth the MG improvement).

Gradually as I took more prednisone, my need for mestinon went away and 6 months after diagnosis I am not using it as I try to adjust prednisone levels to handle the MG problems.

Remember, mestinon improves the symptoms but does not treat the underlying problem--our immune system producing destructive antibodies, and that needs to be treated too in most cases.
sunev1961
sunev1961
That's great news. I hope the energy continues!
Best wishes
Gez
Joe-Fodor
Joe-Fodor
Thank Mary Broadfoot Walker! And when you have a chance, look for the 1930s youtube film that shows the miraculous recovery of one MGer.

http://www.youtube.com/watch?v=uRoRsmvkhTI

Did you know that Mestinon is also an antidote to nerve gas?

http://en.wikipedia.org/wiki/Gulf_War_syndrome#Pyridostigmine_bromide_nerve_gas_antidote

~Joe