Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
http://www.dailystrength.org/groups/myasthenia-gravis-links-and-news/discussions/messages/16557514
Introduction to the Links Member Group
Posted on 09/10/12, 06:43 pm
We have started a Member Group so that we can access frequently used information, articles and discussions of interest, and some other writings important to the main group.
Here is the link to the Member Group. Be sure to click "view all " in the bar in discussions. At this time there are three pages.
Also be aware of the information available on myasthenia.org which is the web site for the Myasthenia Gravis Foundation of America. Many of the publications and information there are linked in these discussions.
Suggested beginning reading for new members:
Overview of MG
Manual for Healthcare Providers
Myasthenia and Medications
Tips for Daily life
etc, etc. etc.
When you ask questions, you may be referred to this group. If you ever have any problems with the links, please inform the founder or one of the administrators.
Any one can contribute here and there is a discussion about posting a link.
These pages are primarily informational and any questions about what is posted here are better asked on the main page.
Introduction to the Links Member Group
Posted on 09/10/12, 06:43 pm
We have started a Member Group so that we can access frequently used information, articles and discussions of interest, and some other writings important to the main group.
Here is the link to the Member Group. Be sure to click "view all " in the bar in discussions. At this time there are three pages.
Also be aware of the information available on myasthenia.org which is the web site for the Myasthenia Gravis Foundation of America. Many of the publications and information there are linked in these discussions.
Suggested beginning reading for new members:
Overview of MG
Manual for Healthcare Providers
Myasthenia and Medications
Tips for Daily life
etc, etc. etc.
When you ask questions, you may be referred to this group. If you ever have any problems with the links, please inform the founder or one of the administrators.
Any one can contribute here and there is a discussion about posting a link.
These pages are primarily informational and any questions about what is posted here are better asked on the main page.
"Take from my story what you will but always remember that this disease is truly serious and can kill you. Be prepared. WHENEVER, if ever, you experience breathing difficulty, IMMEDIATELY seek medical help. You may have less time than you think! In the meantime, enjoy every day to the fullest. For me, that means riding my motorcycles or photographing the world with my view cameras or my Leicas, or making prints in my darkroom. "
This one of Curt's quotes at the top of the Links Group page. His obituary and that of Carla and Marvin are linked in the Honorary Members Memorial Site. Their valued contributions: knowledge, humor, and optimism are ever present in their words on these pages and in the lives of those who read them.
Be careful and carry on! :-) b.
luv, Larissa