Mine say "Myasthenia gravis, taking Mestinon. May need help breathing."

I should really add prednisone to the list now, but the key part to me is that if I'm in such bad shape that I can't advocate for myself, somebody needs to know that I may need assistance to breathe.

I make sure to wear my bracelet or necklace anytime I'm out of the house, just in case.

Just got mine today. Says Myasthenia Gravis
Meds : Mestinon, Prednisone, Azathioprine

Mine says Myasthenia Gravis, the hospital I want to be transported to and medical information on wallet card and on refrigerator.

i don't happen to wear id just in case but i always have list of drs, meds medical history,hospital,surgeries and contact info in wallet attached to license. whenever i update it i also give new copy to husband ,sister and 2 grown kids. it's also on fridge which i uesd to take when i could walkdog. ALSO from paramedic son- on cell phone list under ice name and phone #s itmeans in case of emerg call whomever. i used to carry reg info when i walked dog prior to being decriept. noone should be out without some kind of id and contact info doing anything. it's one of my passions since my son occas picks patients up who have nothing on them how sad that someone can die without family knowing for a time! have a safe healthy w/e!

My name
Myasthenia Gravis
May cause weakness and slurred speech
ICE: Bill (123) 345-6789

My name
Myasthenia Gravis
info in wallet
on back
contact info
Husband and daughters name and phone numbers

I have been looking to get one because I have a community based DNR. However in speaking to my local first responders including the medical person who heads the code team at the hospital where I work, they do not seem to really know the laws governing community DNR. That really concerned me. The law in NYS says that the bracelet can stand alone as my legal/medically backed wishes not to be intubated or resuscitated even in the community. They seem to only be aware of the document....do I wear it pinned to my chest? It also states that I am to be given morphine and oxygen for comfort. Still researching....Barb,

Thank you all. I was waiting until my meds list was finalized, but how much can this cost? Better to order one with my diagnosis and identifying info and order another later if necessary than possibly run into a problem.

if i was brave enough i'd think about a tattoo -not i'm a chicken!!!

I have 1 med alert charm on my watch and 1 attached to my purse zipper. One of them I bought at Lauren's Hope internet site. Theyare having 40% off sale today and have lots of cute bracelet's. They also have a spot to click and see examples of what to put on your bracelet. I've been happy with mine and may get more items from them in the future.

mgot,

Thank you for posting the information about med alert tags on the Lauren's Hope site. They have an excellent selection! That was very helpful information. I am about to order.

Hope

N-Syle ID is also good--a little cheaper than Lauren's Hope, and I got my bracelet from them more quickly than I did from LH as well. I've also had good luck with cute, non-expensive options on Etsy.com; there are a lot of jewelry makers who do custom medical ID pieces that are stylish and less expensive than the LH offerings. (Can you tell I've ordered quite a few? I figure that if I have to wear a medical alert, I might as well have a variety of fun options!)

Mine had my name, birthdate, Myasthenia Gravis and "See key chain".
I always have my keys with me and I figured this was an easier find than something in MY purse! ;)
On my key chain, I have a pill holder. I have (using an etching tool) written "medical information inside" on the pill holder. It is waterproof and I can get A LOT of information written on the scrolled up piece of paper in there.
I also have I.C.E. saved to my husbands contact on my phone.
I have told my city's emt/fire department that I have MG and where to find the information in my home in the event that a call comes from my number and I am unable to speak.
I feel safer knowing I have these precautions all in place... just in case.
I no longer wear my medical alert bracelet, however... because I did get a cute little teal ribbon tattoo on my wrist this summer! ;)

Hi Everyone!
I just wanted to add one of our prior members (Curt's) thoughts about med alert bracelets which I thought was very well thought out and could just be food for thought.

He did not have a bracelet. He wanted to make sure that if he was unconscious - that the EMT's etc - who might not be familiar with MG - didn't hesitate to help with compressions and breathing and saving his life first before thinking about the MG.

I am not sure how I feel - but as a person in the medical field - I do know that we are not taught a lot about MG. I would like to think this wouldn't get in the way - but perhaps some might second guess what they are doing to make sure they are not interfering with MG.

Best
Nicole

Mine are dog tags from the army surplus store which cost about 4 dollars on it it has my name allergies my neuro doc name phone number my dease and also the V.A. phone number
Chuck