Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Said id post the links I got yesterday here they are.
cheek out these links. this is a good site..
http://www.myasthenia.org/Home.aspx
this is the up to date site. just search myasthenia gravis
http://www.uptodate.com/home
Here is a emergency alert card link to down load and keep in you wallet or purse if you want. scroll down to were it says emergency alert card 1 and card 2..
http://www.myasthenia.org/LivingwithMG/InformationalMaterials.aspx
hope this helps some .. like I said im sure this is posted here some place im just sharing what I got and hope it helps someone. May be other people here can post there links here to get a post with a bunch of info links to help us all or to find what sites have the best info easy to understand and so on.. AHAIN THANKS ALL.
cheek out these links. this is a good site..
http://www.myasthenia.org/Home.aspx
this is the up to date site. just search myasthenia gravis
http://www.uptodate.com/home
Here is a emergency alert card link to down load and keep in you wallet or purse if you want. scroll down to were it says emergency alert card 1 and card 2..
http://www.myasthenia.org/LivingwithMG/InformationalMaterials.aspx
hope this helps some .. like I said im sure this is posted here some place im just sharing what I got and hope it helps someone. May be other people here can post there links here to get a post with a bunch of info links to help us all or to find what sites have the best info easy to understand and so on.. AHAIN THANKS ALL.
I do carry the MG Medical Alert Card, in my wallet, face out, with the word "Emergency" written across the card, in large red sharpie.
There are some more links, on this site. Go to the top of the page, click on Groups, towards the top right, then click on MG. Good reading material there, put together by our buddies.
MG Foundation websites and info, get better all the time.
USA, Canada, Great Britain, Australia, New Zealand, just examples.
Many State Chapters also run great website, as do some regional hospitals.
Check out Medline and other US websites, as well
MG is called a rare disease, meaning the rate of incidence is lower than other diseases. So congratulations, you are a MG Snowflake, just like the rest of us. Meaning, a wide variety of individual symptoms, which often require individual therapy.
Some websites will sound scary. Some websites almost trivialize MG.
As is true with most things, there is usually a middle ground, where you can find good help.
Thanks again, keep us posted!