Well, here's a married, working, independent, graduate-degree-holding MG-er here! Please do hold out hope; our lives may not look the same as they did before diagnosis, but that doesn't mean they're not full and good lives. There is much hope!

Thank heavens. His current symptoms are droopy eye and blurry vision. He is currently on Mestonin, Prednisone, Cellcept. Is there a magic Prednisone dosage that seems to knock out the blurry vision and droopy eye?

When I had blurred vision and droopy eye lid my neuro recommended a small dose of prednisone.I didn't take it.because I hated to start prednisone. I wish I would have taken the low dose for the mild symptoms because a couple months later I had a severe crisis of hospitalization. I think if I would have gone on a low dose of prednisone I could have avoided a major crisis.

So sorry to read of your relative's diagnosis. For what it is worth, my neuro said the only people he knows of that have truly beaten this disease, are young people that have had a thymectomy. Wishing your relative all the best going forward.

I have recently "run" into two women who said they had it in their 20's and went into remission. REmission is ours, is our mantra, even for those of us way past our 20's. It all has to do with the treatment plan. The first two years are the hardest. Hang in there!
Wellness,

another thought is that when people better they tend to get busy and get offline.it's like other illnesses -you hear about the worst case scenarios but there is usually a host of patients doing well with same rxs! slow and steady is the best way for anything adverse in life plans!

I work every day (almost). I was DX 18 months ago and I seem to have better days more and more! Once I get over the problem with the prednisone dropping, I think I will be just dandy.

I know an 80 lady who has MG (not on this site) she had it as a child, had to get treatment and now she is in remission! So, remission is possible.

There are changes in what I can and can't do, but I adjust and hope to be able to do more - like ride my bike or go grocery shopping without having to ride in the cart.

That is so nice that you are concerned about your family member. Welcome to the group!

When I first got diagnosed, I asked if there was a support group in Brooklyn. "There used to be one, but the guy who ran it died" I was told.

When I looked crestfallen, I was told the man who had died was 88 years old, and a World War II vet.

So you can live a long, productive life with MG. Yippee!

Just tell your young friend to be careful of slip and falls, and drowning. Also warn them against taking any drugs that they haven't checked out thoroughly to see if they affect the MG. If you keep healthy, you will get to dance at the wedding! ~joe

Without a doubt it is, being Dx in 2000 but certainly had it a few years earlier I've been working in a pretty physically demanding job in nyc however thats not to say that there hasn't any really difficult days / weeks lol but some how I find a way.

You can live a good life with Mg but like with any other Disease its critical to get the proper dx , than treatment , medications and having a support group none other than this one. A good mental outlook in my opinion can be a game changer one way or the other.

Never , never give up and keep the faith..Cj

Never give up. Much is possible. :-)