Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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/ Myasthenia Gravis Support Group

Introduction to the Links Group

bweeds
bweeds
We have started a Member Group so that we can access frequently used information, articles and discussions of interest, and some other writings important to the main group.

Here is the link to the Member Group. Be sure to click "view all " in the bar in discussions. At this time there are two pages.

Also be aware of the information available on myasthenia.org which is the web site for the.Myasthenia Gravis Foundation of America. Many of the publications and information there is linked in these discussions.

http://www.dailystrength.org/groups/myasthenia-gravis-links-and-news

Suggested beginning reading for new members:
Overview of MG
Manual for Healthcare Providers
Myasthenia and Medications
Tips for Daily life
etc, etc. etc.

When you ask questions, you may be referred to this group. If you ever have any problems with the links, please inform the founder or one of the administrators.

Any one can contribute here and there is a discussion about posting a link.

These pages are primarily informational and any questions about what is posted here are better asked on the main page.
bweeds
bweeds
I think I will bump this up about once a week as we are welcoming new members frequently, and as a reminder to all members that there may be new postings.
b.
bweeds
bweeds
Friday bump for the links group. Some recent additions are Bruce's links for Emergency preparation and patient advocacy, some more links for the Single breath count, and Rosie posted some links to papers about breathing problems some may have missed. b.
bweeds
bweeds
bumping this up
Medications and myasthenia now has the general information about drug interactions and drugs to avoid.
I started two new threads: one with the Mestinon information that was previously with that discussion and one on prednisone (and mestinon) Rx with a link to Will's recent discussion on the main page.
It seemed like a good idea to separate the good, bad, and ugly (only you can decide which is which).
Other treatment information you would like to link (good papers, good discussions, etc) is welcome.
bweeds
bweeds
BUMP,

I put Gwyn's excellent articlein the overview of MG. Tj added an article about antibodies and the severity of MG.
b.
bweeds
bweeds
Friday bump.
bweeds
bweeds
Bumping this up. I linked the current discussion about working with MG under "tips for daily life" There is another discussion entitled "Working with MG" that Bruce started that has links to specific resources.
b.
deleted_user
deleted_user
Thanks, b!
bweeds
bweeds
Friday bump!
bweeds
bweeds
Here's a late Friday bump. With so many people new to MG here and the time of year when there is a lot of both good and bad stress and any is "bad" for us, just a reminder to be sure you have your emergency packet at hand and a gentle reminder to eat your green and yellow vegetables and, as my grandmother used to say, if you have cookies, three is a good number, and you will need to get your sleep at night or Santa Claus will put coal in your stocking.

If you are not doing well, and even if you are, be sure you have phone numbers of those covering for the holidays and enough medication. And have as good a time as you can--being happy is good for lots of things, including MG. Now if I can just follow my own "good advice." b.