Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Introduction to the Links Member Group
Posted on 09/10/12, 06:43 pm
We have started a Member Group so that we can access frequently used information, articles and discussions of interest, and some other writings important to the main group.
Here is the link to the Member Group. Be sure to click "view all " in the bar just above discussions. At this time there are three pages.
Also be aware of the information available on myasthenia.org which is the web site for the.Myasthenia Gravis Foundation of America. Many of the publications and information there are linked in these discussions.
http://www.dailystrength.org/groups...
Suggested beginning reading for new members:
Overview of MG
Manual for Healthcare Providers
Myasthenia and Medications
Tips for Daily life
etc, etc. etc.
When you ask questions, you may be referred to this group. If you ever have any problems with the links, please inform the founder or one of the administrators.
Any one can contribute here and there is a discussion about posting a link.
These pages are primarily informational and any questions about what is posted here are better asked on the main page.
Posted on 09/10/12, 06:43 pm
We have started a Member Group so that we can access frequently used information, articles and discussions of interest, and some other writings important to the main group.
Here is the link to the Member Group. Be sure to click "view all " in the bar just above discussions. At this time there are three pages.
Also be aware of the information available on myasthenia.org which is the web site for the.Myasthenia Gravis Foundation of America. Many of the publications and information there are linked in these discussions.
http://www.dailystrength.org/groups...
Suggested beginning reading for new members:
Overview of MG
Manual for Healthcare Providers
Myasthenia and Medications
Tips for Daily life
etc, etc. etc.
When you ask questions, you may be referred to this group. If you ever have any problems with the links, please inform the founder or one of the administrators.
Any one can contribute here and there is a discussion about posting a link.
These pages are primarily informational and any questions about what is posted here are better asked on the main page.
http://www.dailystrength.org/groups/myasthenia-gravis-links-and-news/discussions/messages/14679560
Here is another:
http://www.dailystrength.org/groups/myasthenia-gravis-links-and-news/discussions/messages/14595487
There are a couple more about breathing mechanics. There are also links to the pamphlets provided by the myasthenia,org which would be found under materials to take to the hospital.
The main thing is that if in trouble get help! But you will get the best help if you are informed and have an informed advocate with you.
This is really good information for anyone and thanks for taking the time to share it . I've always said knowledge is power.
Enjoy your Labor Day weekend :)
Cj