Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
intersting search in regard of cov 19 vies a vies to mg, i am enclosing the following 3 sites with very interested info, the first one need to be read to the end since some info came fro stanfort univ.
Https://hindustantimes.com/helath/cov19/tiedto-muscleweakness
covd19 in patient with mg
put out by the nih
pubmed.gov
the 3rd. myasthenia gravis news.com/info about cov19 for mg.
some have recomendation in regard og meds, actually it is very informative
best of luck
Andre
Peter
cov18 ted to mscules weekness desease/ myasthenia gravis
the cli in the subject
covid 19 in patients with mg put out by pubmed.cov
then clik on the subject
myasthenia gravis news.com info about cov19 for mg
the clik on subject
this sould help you sine you seems to be not aware of how the comp. iformation is set up
good luck this ti
https://i.pinimg.com/564x/57/f1/b1/57f1b1e3625a6493cfbac579ceaae6fa.jpg
https://justthenews.com/politics-policy/coronavirus/florida-requiring-labs-report-critical-cycle-threshold-covid-19-tests?fbclid=IwAR2gUJc9TmBS9DEkIJIjNnN9388M8q__YPuse4om_ZEd6Z3QWCEFO8Bkp7c
Found the article interesting, however, I have some of concerns regarding accepting the premise that Cycle Thresholds are accurate and relevant.
- "The "cycle threshold" is the number of amplification cycles a PCR test goes through before it determines the presence of a virus. The lower the cycle, the higher the viral load from the original sample; a higher cycle, on the other hand, means that the machine had to work longer and harder to detect a scant amount of virus in the original sample. "
The following bullets are taken from the "Just The News" article as well as other articles referenced in it.
- "Many of the health officials qualified their responses with caveats about PCR tests and threshold data. Vetter, for instance, argued that cycle thresholds "outside the context of having clinical information such as symptom onset date" are "not valuable and hold little meaning in a clinical context.""
- Edward Desmond, the administrator at the state laboratory in Hawaii, admitted that the state does not collect cycle threshold values for tests performed in that state. "CT values depend on the chemistry used, the instrument used, and the nucleic acid extraction method used," he argued. "CT values also depend on the quality of the specimen collected. So there are many sources of variability. For this reason, there is limited value to reporting or trying to interpret CT values."
- As with some of the state health officials, other health experts have at times disputed the immediate relevance of cycle threshold numbers. The Association of Public Health Laboratories said in a release last month that "Ct values should not be used to determine how infectious someone is" and that "although Ct may be used as a proxy for viral load, caution must be taken when interpreting in this manner."
https://www.aacc.org/cln/cln-stat/2020/december/3/sars-cov-2-cycle-threshold-a-metric-that-matters-or-not "Ct values from viral RNA can vary depending on method of specimen collection, specimen source, transport, and the time from infection to collection to analysis, the committee wrote. Not all diagnostic assays or platforms can produce a Ct value. Additionally, no standard exists to validate quantitative assays that produce comparable results from labs and manufacturers. ...
...Matthew Binnicker, PhD, director of clinical virology at Mayo Clinic in Rochester, Minnesota, brought up similar concerns in the Journal of Clinical Microbiology. “Unfortunately, PCR Ct values may vary significantly between assays, even those using the same gene target. During the COVID-19 pandemic, it has become common for clinical laboratories to perform multiple real-time PCR assays to detect SARS-CoV-2. Therefore, including the Ct value on all positive results may be confusing and misleading to ordering providers,” wrote Binnicker.
In his view, labs should not routinely report the Ct value. Instead, they should provide it to physicians verbally on a case-by-case basis. “This approach allows for clarification of the assay used for testing and a discussion of the limitations associated with using the CT value while interpreting the result,” wrote Binnicker."
It appears that the Cycle Thresholds testing results are questionable based many variables.
I would suggests that if we were actually effectively testing, here in the states, the testing methods could have been Standardized to include Cycle Thresholds that might be a valid indicator as to Covid's infection level. I might further add that even if we had Valid Cycle Threshold numbers it might not have a positive effect on the individual Covid patients' therapy.
I appreciate any and all information regarding my MG and Covid but would like to see more than one referenced source, Just The News, whos credibility is questionable.
* Just The News = Appears to be a News Source that is associated with John Solomon, who - ... 'he has in recent years been accused of magnifying small scandals and creating fake controversy.[8][9][10} - https://en.wikipedia.org/wiki/John_Solomon_(political_commentator)
BTW - As the Director of Quality for a prominent steel business, I spent much of my career as a Quality Engineer specifically designing testing methodologies that focused on Methods, Materials, Manpower, Machinery and Environment in a multinational manufacturing environment. The test results were analyzed to create and implement Process Controls to Continued Process Improvement in a cross functional environment in the steel industry.
Scott
So, what I find is that any person or entity that questions the going narrative get labeled as conspiracy theory and potential fake or controversial, fringe etc. All it takes on Wikipedia is someone to say these things and then someone to edit the page and cite it. Accused of something isn't indicative of actuality or reality. Kind of a smear job for someone like John Solomon, who has won distinguished awards for journalism, isn't it?
Anyway, I didn't elaborate enough. The inventor of this test, who passed away in 2019 stated this test should not be used as a diagnostic tool for infectious disease because of how it works. It is a research tool and he won the Nobel prize as a result. https://www.nobelprize.org/prizes/chemistry/1993/mullis/facts/
I agree we need to have a standard CT for calling someone positive because of the amount of false positives. You cannot get something from nothing and the Koch Postulates teach us that.
https://en.wikipedia.org/wiki/Koch%27s_postulates
How can you determine if someone even has an infectious disease without symptoms? In other words, asymptomatic transmission is not real or extremely rare at best. They have done research in this area:
"These findings are consistent with other household studies...reporting asymptomatic index cases as having limited role in household transmission".
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2774102
"The standard tests are diagnosing huge numbers of people who may be carrying relatively insignificant amounts of the virus." ..."Most of these people are not likely to be contagious"
https://www.nytimes.com/2020/08/29/health/coronavirus-testing.html
https://www.theblaze.com/op-ed/horowitz-study-weak-asymptomatic-coronavirus-transmission
https://www.bmj.com/content/371/bmj.m4436/rr-10
https://pubmed.ncbi.nlm.nih.gov/32513410/
How many people test positive with no symptoms? A great amount and they are of no concern. If the CT was at say 40, those should not be positive cases. Even Fauci himself said the CT is significant. He states as much around the 4 minute mark here https://www.youtube.com/watch?v=a_Vy6fgaBPE
Something needs to be done so we stop creating the fear that has spread to where people don't even want to be around each other. I am hoping this is a step in the right direction as transparency of the CT seems to be of extreme relevance.
TJ
It is very difficult to determine which way is up.
Unfortunate.
https://drsircus.com/general/medical-massacre-or-enlightened-medicine/
It would be most unfortunate if what you have cited is true.
His credentials are questionable based on a short research, on this Dr., in the internet.
I guess everything is questionable and I will keep this in mind.
I do not wish to go down this Rabbit Hole.
I would prefer to read articles that are more relevant to MG and I do not feel that the above opinion/article is where I want to spend my time here.
For my part - please refrain from posting this kind of material or I will no longer visit this site.
Thank you,
Scott
**unable to perform normal daily activities, unable to work, required care from doctor or health care professional" I think that is significant out of 113,000 doses. And this is only the first dose!
https://www.cdc.gov/vaccines/acip/meetings/downloads/slides-2020-12/slides-12-19/05-COVID-CLARK.pdf
We all have choices to make, Scott. Good luck to you!
Natural medicine has been a life saver for me and my quality of life is very good because of it. I for one refuse to be told there is no cure for MG because in my belief all things are possible with God. Most TV scientist are the quacks now days. Cancel culture is one of our biggest problems now days. People want you to shut up if they disagree with you. I saw the other thread in this forum.....what is that, I will tell you its an inquiry as to "can I shut up someone" on this forum that I dont agree with. Sickening.
***rant off***
AND NOW... https://www.zerohedge.com/covid-19/who-chief-scientist-warns-no-evidence-covid-vaccine-prevents-viral-transmission?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+zerohedge%2Ffeed+%28zero+hedge+-+on+a+long+enough+timeline%2C+the+survival+rate+for+everyone+drops+to+zero%29