Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Injuries incurred from MG

Luvspringers
Luvspringers
Hi everyone !
I'm just curious if any of you have incurred injuries due to your MG? I understand MG affects everyone at varying degrees and people function at different levels. I was wondering if any of you acquired injuries due to overdoing it, or hurt one muscle group that was compensating for another. I'd love to hear your feedback.
arniebb2
arniebb2
Hi Luvs...I've had two bad falls that I believe were caused by my MG. Both were on stairs (going up) and I don't know if I didn't lift my leg high enough or if there was a bit of 'foot drop' involved. I fell onto landings both times and suffered very bad bruising. Glad that was all!
I've taken the suggestions of others here and use handrails and never carry anything when on stairs.

Have you hurt yourself? Hope not...hugs.
debbie1973
debbie1973
Too many to count. When I think about it I can't believe I'm alive. Fell one time straight back & hit my head on a boulder. Had a lump the size of a goose egg. Some walking situations can send me in to a cold sweat. Be careful. Hugs.
deleted_user
deleted_user
With the first exacerbation, I fell and thankfully did not break anything. The weakness is still very bad and I just take my time and say, I am not going to fall. I think I talked myself into the first one saying, I am going to fall.
GreenMarie
GreenMarie
My first year with muscle weakness I had 12 bad falls. One ankle was sprained so badly twice it had to be x-rayed to be sure it wasn't broken. I seemed to have problems on uneven surfaces and also with one ankle giving way and just with balance in walking in general. I often felt like part of my body lagged (right side) and I think I wasn't good in co-ordinating it on un-level surfaces.

The past year on medication I have not had falls. I seem to be doing better in that category.
deleted_user
deleted_user
Although not really an injury, I got quite sore in the neck from trying to hold my head up. When I had double vision and drove my car, I found that if I tipped my head way back and looked out from the bottom of my eyes, the double vision went away. So driving along in the rural areas, if I saw a car coming or came to an intersection, I tipped my head way back to see better.
Really got sore necks from that coping mechanism. I too fell a few times, but luckily it was more of a slow crumple than a real fall. I tried to stay on flat surfaces, use both hand rails on stairs, and, as I had just had a new knee put in at about the time MG struck, I continued used of a cane for a time after my knee was OK. Added comfort I guess.
Good Luck