Getting home is best place for you. Too much flu and with our disease we cant get sick.

I would be curious to what your doctor's explanation would be. Have you inquired to his/her reasons?

DM

I was discharged today and I don't see my neuro until the 22nd.
The attending just told me that it is a very individual thing (how many treatments one receives...)
I was just confused as I was anticipating being in the hospital for a few days.
Happy to be home!
Agreed no need to get sick hanging out in the hospital!
Thanks
Jamie

I go into hospital as out patient IVIG every 2 weeks. I try to get in and out as fast as possible. Usually about 4 hours. Hospitals full of sick people.
D

That is not my understanding. My IVIG is done by my weight and there is a limit to how much you can get. In other words, I try very hard to cut the number of days down and I can only get down to 3 since I need to get a dose of 210 grams based on my weiht and they will not go over 70 grams per day. Regardless, it sounds like you are functional and a wait unti 1/22 isn't so bad, of course, if you have issue. high tail it back to the hospital and let them sort you back out. Good luck!!

There is a formula that goes by weight for IVIG. That shouldn't change for one sitting. As for how many times you do it, that can be an individual thing.

When I received IVIG, I did five sittings, one every other day, for nine or ten days total. (That is five infusions in ten days) I have never had any since. I believe in IVIG

Hello everyone,
Thank you for your comments and concern.
I met with my neuro and she explained the timing change to me...apparently since they ran the IV continuously I received the full dose. (It took about 16 hours as it was run very slow at rate 40 ) The 2 1/2 days would have been if they had disconnected me in between each treatment.
Doctor now says I will need two eight hour courses every three weeks.
She is having a nurse come to my house two days in a row to administer the treatments.
Has anyone had this done at home? I am a little nervous about it as at the hospital they had me on a heart monitor...
Any advice ?
Thanks
Jamie

I have had it done at home and it was much better than going to the hospital. Was not scary at all as you are the only patient for this nurse

Iv had IVIG at home for almost a year , only way to go!

Good luck
Annette

First of all, unless IVIG is the only treatment that works, I don't understand why people have to go back. I am no doctor though and this seems to happen often.

I believe the speed you are getting is VERY slow. It should get faster after starting.

I finished all of my sittings in less than 6 hrs per sitting. Most of them less than 5hrs.

Having said that, it was too fast for me one time (over 320) and I did almost go into shock, so having the heart monitor is a good thing. Never hurts to take precautions.

I was very comfortable going around 160-200 most of the time. There should be a gradual increase, starting with 16 or 32 until a max speed and then that goes until bag is empty. May want to consider going faster so you don't have to sit so long.

Good luck

I would do IVIG again if I needed to.

I never go over 120, and yes, I have it done at home. The nurse takes my blood pressure regularly.
Wellness,