Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
My wife had her birthday on Memorial Day. We had a great day with the kids. I was just about to light the candles on my wifes cake when my wife came running out of the bathroom yelling, Theres water everywhere! I thought it was just a mess my 4 year old daughter made. (Shes good at that!) It turns out a pipe burst in the wall. Aaaaargh! I ran outside and turned the water off. I then went and lit the candles, sang happy birthday and went to work tearing apart the cabinet and wall to fix the pipe. After it dried out we decided to do a complete remodel. I have been in construction all my life and was kinda looking forward to a project. The next weekend I went at it. I worked about 12 hours gutting the bathroom and starting to put it back together. Boy did I overdo it! That night I was so wiped out I needed help to bed. The next day I could hardly get up. My wife had to bring me mestinon in bed. I was walking around for the next few days dragging my feet like a 90 year old. I guess I have to learn to take things a little slower. Thats not easy for me. I can be a little obsessive about getting things done! It was a little scary that it took me so long to feel better. I guess Im one who has to learn things the hard way. Typical guy!
Cathy
By doing that I am being responsible to those that love me. I can be there alot more for them when I am not a wet noodle. The problem that I am having with my family is that they don't want to recognize that there is anything wrong with me.
That makes it hardest of all, the lack of support. Once they get it, I know I can handle this, right now I feel like a salmon swimming upstream. I hope you have support, sounds like you do. I think it is a HUGE factor on how we do with this or whatever else, MS or Congestive heart failure, that they think I have.
The disease is not nearly as hard as the discouragement I have felt. I hope others on this site have support and if they do not, I pray that they can find it. At least on here, the support here is amazing. The knowledge, and knowledge is power. So true. Take care and don't go faster than the speed of sound, k.
Good luck with the project but take it slow.
Charlotte
(My mind and my body don't always agree especially for unusual, demanding tasks, like building a brick wall, where the first day is OK, the second day the body says it doesn't think it is a good idea and the third day it says, WHAT you want to do it again--OK but you're going to suffer. And the body has always been right. Listen to your body.) b.
Things like this give me a big old case of the "I cant's" and I don't like hearing my head (or my mouth) say those two little words! I sometimes feel like I am starting over with processing and dealing with the truths of MG... but I look for a new lesson every time, and sometimes I even find one ;)
Guess I am a typical guy too :)
I always love knowing that my friends are being cared for by there loving spouses... Please tell her Happy Birthday!
Love, Becca
My other muscles will feel weak..my legs heavy but that is releaved by the rest I take for my breathing muscles.
Always a lesson to be learned I quess.
The unpredictability is interesting. We have to treat ourselves with kit gloves.....whereever that saying comes from.
Just like....cole slaw.....I always thought it was cold slaw...oh well....ha
Ann
Tell your wife happy birthday and we are thankful she took care of you (and hopefully didn't point out the error of your ways, lol).
Cathi