It is all just a roller coaster ride.
or
A boat ride with lots of waves and sometimes a calm.
Whatever life throws at us ......
I am grateful I have a diagnosis.
Ann

Tara, i understand your question. I am waiting for results of my lab tests. I am new to this site and have enjoyed reading everyones information over the past few days. should have results back by 1/13/12. Don't really want to have MG but part of me would like to know whats going on or am i just depressed, overweight and out of shape!
charity

Tara,
I almost kissed the neurologist when he told me I had MG. I had thought it was ALS which is so much worst. My wife and I went out and celebrated that evening.
Be happy! You have a treatable condition and a good chance of becoming symptom free or at least having symptoms that do not interfere with your life too much. You don't get many people in remission on this site becase they are all too busy getting on with their lives.
Gwyn

Tara,
My first treating neurologist said "that it was his clinical opinion that we are probably dealing with MG" and that his SFEMG was "suspicious" on one report and "borderline" on another. The real clincher was how much better I was 20 minutes after my first dose of Mestinon. My current neurologist said that the same SFEMG was abnormal in the way MG is abnormal and that is my diagnosis. For me it was so many years that it was a celebration and a great relief, but there have been bad times since diagnosis, too. No one wants MG, but it is treatable and somehow it is better than feeling like I am crazy or lazy. We know something is wrong and if we can put a name to it, we can deal with it. b.

I'm glad to hear you have a diagnoses. I totally hate not having a diagonses by a neuro..a complete roller coaster ride. Ann, I totally agree with what you say!

Charity...I totaly hear you

I agree that ALL of the feelings that flood over you are normal!
It really is a process of learning and acceptance! Some days are celebratory and others not so much, but at least you can move ahead to the next steps now!
I had my Doctor repeating himself, "So I have a diagnosis now?" "I am done with testing?" "I can move ahead with treatment now?" ... etc. I think we get so caught up in fighting for that call that we get confused about what to do next!
I am very happy for you! Cheers to the coming years and having this portion of the process behind you!
Love, Becca

I was relieved when I was diagnosed and I had only been showing symptoms since April and diagnosed in August. I can't imagine what it would be like to go months and months and months not knowing what was wrong with me. Despite being diagnosed with MG, I am the happiest I have been. I have a whole knew outlook on life and am doing my best to live each day to the fullest.
:) Cindy
p.s. I'm going to the support group meeting tomorrow at Newton-Wellsley Hospital, will you be there? :)

Very good, Tara. A long, tough fight, for you. (Gotta like that Dr. Weinberg.) But you have made it past - a significant hurdle.
I can't say what the future will bring. Or what future treatments - will bring. But you have crossed a significant hurdle.

Ann says: Life with MG - is a roller-coaster. Becca also says: Life with MG - is a roller-coaster. And Becca also says: Make sure - YOU DRIVE - that roller-coaster. That's my basic mantra, these days.

Neurologists experienced with MG - are a godsend. But you are the person, who is really in charge. (I know. There are a lotta days, when it doesn't feel that way.)

I came under the care of the neurologists at St. Elizabeths, 37 months ago. No question, I am debilitated (went too long, without a full & correct diagnosis, before St. Elizabeths. My fault, as much as anyone's.)
But since then? St. Elizabeths has kept me on an even keel. Some days are good, some days are bad, but most days are fair-to-middlin' (as the saying goes).

Good Luck to you. You will still - have a lot of questions, for your doctors (and for us) - as you go along.
(So proud of you - and everyone else here! THIS - is a real team!)

Tara so glad you got a diagnoses, you are past the first hurddle... sadly it does make us happy when we are told that we have MG as it seems to give validation to how we feel. hugs from Texas, Annette

I was also diagnosed by dr weinberg-what a small world. I have found him be so smart and willing to work with you as a person. I was finally relieved to have a diagnosis after over a year of symptoms-I also was wondering if I was out if I was out of shape as brneyedone. But I having trouble finding a treament that is working....lots.of trial error. I find this to be the most frustratingpart. and the results don't come quickly. Glad that you have a diagnosis..
deb

You should be excited, cry, scream, jump up and down (probably not too much of that though ;-), don't be surprised if you even feel angry at some point. All are normal and acceptable reactions. It's a difficult thing to move from fighting for a diagnosis to having someone say okay, this is what it is and we are moving on to the treatment phase. Believe me, we all understand.
Cathi

After my husband and in laws seriously thinking i was just lazy, crazy, basically a faker when i was given a diagnosis it made me smile..i was jumping inside....because it wasnt in my head and i then found myself
realizing what it meant to feel so relieved...i was so troubled with my emotions! But i think in time i will figure out what emotion i feel...kinda numb right now.lol.!

gosh, i think we all go thru the same sort of process with looking for a diagnosis and reason why our bodies aren't working right. if you have a heart attack they know it. if you have MG who knows. i am still waiting for lab results, ive been noticing more and more things that are going on with me that could point to MG. if they call me today and tell me my labs are positive i will be relieved but my co-workers, friends and family will think im nuts!

Tara- it sounds like you are close to a positive diagnosis. After six months of choking, nasal speech, nasal regurgitation, droopy eyelids, my search came to a halt on my first visit to a neuro. After an hour with the electric shock test (which I found very pleasant and FUN), he allowed me some Mestinon. Half hour after taking that one pill, he and I both knew the diagnosis.

I actually live very close to you, over in Pittsfield, and happen to know where you might find some Mestinon. Will your doc allow you to take just one pill?

Curt