Hi Im on 1500 twice a day! No adverse effects so far. Ive been on cellcept since December and gradually increased to this dose.... been on 1500 x2 for about a month.

P.S My neuro told me that was the max "male" dose.... I am female! but tall so he gave it to me.

I'm on 1000 mg two times a day, I'm symptom free. I've been taking it since July 2013. I'm also on mestinon 30 mg every 4 hours or 120 mg a day.

1,000 -- 2 times a day

1500-twice a day. Have been on it for almost 5 years and maximum dose for me was 3500 mg daily. It's a good drug - had very bad side effects from Imuran.

1,000 mg twice a day for me, too!! It definitely helps once it kicks in which took 5 months the first time and I had to stop due to diverticulitis and surgeries. Just restarted it in Feb and this week already I noticed a little more strength!!

Make sure you use sunscreen!! very susceptible to skin cancer!!

Seems I've been the odd one out since my diagnosis in January 2012. I've never been on Prednisone. My diagnosing doctor started me on 250mg of Cellcept twice a day. That dosage has not changed. My current neuro feels that this dose has served me relatively well and sees no need to increase.
best of luck.
Larissa

720 /twice a day. I 'm not sure how the doctors determine the amount. I was told Imuran was basically 1 mg/ per lb. so I was on 100 mg of Imuran( I am 115 lbs.). But when I started cellcept my dr. said it wasn't determined by weight. That s a good question. I don't have a really good response to cellcept. I still need IVIG every 6 weeks. I asked if I could drop cellcept due to the possible long term side effects. My neuro feels it is somewhat working, and after trying different drugs( immuran/cellcept /pred./IVIG) I am finally seeing a lot of good days, so am finding that 15 mg EOD of pred./ 1440 of cellcept and IVIG every 6 weeks keeps me symptom free. ( for now)

500 MG 2x day. I asked my neuro for how long, and he said indefinitely. 1500 doesn't sound too much. Get started--it works for most of us.
Be well,

WOW!!! Greatly helpful responses. I really appreciate everyones input.

Allright, not so worried now about 1500 mg total per day


Gary
(the "Scidude")

Hi scidude, I too am on 1500 MG's twice a day of Cellcept. My neurologist at Stanford University tells me that in a few months she will begin reducing that amount. She has already begun reducing my amount of prednisone. I don't know if she intends to stop it completely, but certainly cut back on the dosage.

With MG it seem your med dosage has a lot to do with your current state of MG health. The more the symptoms the greater the dosage of MG meds. But 1500 MG's of Cellcept seems quite normal, if not average for people who suffer from Myasthenia.

One word to the wise, however. Since I began Cellcept a several months ago, I have had two serious (life and death threatening), cases of kidney infections. Both included hospitalization and serious antibiotics. So be careful not to expose yourself to dangerous bacteria. Wash after every trip to the bathroom, even your own, but especially the bathrooms other than your own. Stay away form people who are sick or have infections, and crowded places.

Do not eat things that might have been around too long past their shelf life, or just look old, or do smell fresh. Treat your body the way you would treat a new born infant. There is nothing worse than to wind up in the hospital being treated for an infection of any kind when you're a MG victim.

Take care of yourself, scidude, your fellow sufferer, Bob

Just started a few weeks ago....1,000mg 2xdaily

1000 mg twice a day

I was 2000 mg a day up till a month ago was on that for more than a year. Now I am on 2500 mg a day no problems I know of so far.

2000 a day. Clinical studies showing it effective were done 1500-3000 mg a day