Hi again! I worked first 3 years I was DX but then they retired me because of medical restrictions, after working there 29 years soooo..Now I get pension, not very large, and SSDisability...Only reason I make it is boyfriend here and still works so we are managing to keep house etc..I have wellness account from job that at least pays my supplemental insurance and have medicare as primary so thank god for that...Worked part time for a while but found kinda hard after a while....So volunteer and do as much as I can..I think you can work but dunno if you will be able to keep up with that schedule...I would slow it down a bit and see how it goes..My job was very physical and very long hrs so wouldnt have made much longer anyway...Did get to much....But as i said I would slow down especially until you get meds going and working good....Takes its toll after a while so just do what your body says you can.....Good luck.....PS I actually miss working!

I'm working full time at a desk job. I gave up a busy research job four years ago because I was so fatigued with all the walking and carrying. Now am much better on Mestinon but was having trouble talking on the phone and walking to neighbouring buildings before diagnosis. Now I hope to finish work in five years and retire at 60. I found out I'll have 100% drug coverage until 65 when provincial plan (in Canada) picks up most drugs. I also have 100% for travel insurance until 65 so plan to travel, while able.

This disease does throw plans for a loop so we are saving like crazy for retirement/disability. At least I have long term disability for the first time in my life with work. I probably wouldn't qualify if I applied elsewhere but it is a bit of a cushion.
Flutebell

I work full time and some (most) evenings I am on the sofa or in my chair. I might be able to do a few chores or errands, but not much after a day of work. I only (hahahah) work 8 hours a day, 5 days a week. There is no way that I could work 8AM to 10PM 6 days a week. No way. I am thinking of going part time. It would be a crunch financially, though. So I am trying to hang in there. I don't have energy to try to exercise in the morning OR in the evening. When I started working after my DX, I started part time and worked back up to full time. My desk job is relatively stress free and not strenuous. Good Luck. Barbel

I work full time as a kindergarten teacher. I also am a single mom to a teenage daughter. I leave the house at 7 am and am usually not back home til 5pm...later if my daughter has a track meet. Most nights I am in bed by 8, the latest. Weekends are usually busy driving her around, but I have learned that naps help out tremendously! :-). My first year being diagnosed I missed the whole school year, as my symptoms were not under control. So far, so good.

I work full x as I have to for the insurance , my husband is on disability. I take naps on my breaks and sometimes lunch x. I hired a lady to clean my house every two weeks. We do what we have to do. I come home at times and have to lay down before supper.
Annette

I work full time. I am pretty much symptom free with taking Cellcept, Prednisone and Mestation and eating a Gluten free diet.

Hi. I work 25 hours 4 days a week. I find when I get home I have little energy for much else! Having said that if I gave up work what would I do with myself??!! Still trying to find a balance where MG and work don't suck everything out of me. I have a wonderful husband and 3 somewhat lazy young adult children (they're wonderful but lazy if you know what I mean). I'm not sure if I have an answer for you but you are not alone! Looking after your health does often mean sacrificing other aspects of your life. Best wishes. Gez.

I work full time as an Electrician 35 hr work week plus overtime when I can . It's a physical job so there are times where I have to pace myself . Most of my coworkers are understanding but I don't always count on that . Since my dx in 2000 I've managed to get some "light duty " work where it's not as physical however there are so many variables involved in that job description .

Good discussion topic Elle as I find it interesting to hear how everyone else is functioning in work environment . Make no mistake to those who don't go to work that they in my eyes do have a full time job in the management of Mg .

Cj

I work full time. Sometimes a lot more. I have owned my own business for 25 years. Not being married ,, it is my sole support and my health benefits. I have had a good stretch mg wise., ever since I have moved my IVIG up to every 4 weeks. For instance yesterday, I worked 8 hours, stopped at the market, came home and was able to swim in my pool for about 20 minutes. My kids came over for a swim and dinner. I sat outside and read for awhile and went to bed at 9:00. For me, this is a perfect day. It's taken along time to get her. But my work and the stress is not good for my health. I am in the process of selling it, so I can work on my health I will have a 3 year employment contract, 25 hours/week and full health insurance.. Like others have said, you need to find a balance that works for you.

Obviously it's a balancing act for everyone....work, strength, financial, health, continued insurance, etc etc.

I feel lucky that my dx has come during our slow time at work but worry about what will happen in a few months. Right now I'm trying to figure out meds mix that works for me. This all being so new. Some days (like today) I still can't even wrap my brain around it and I want to just stop all these pills but I know better.

I work in live entertainment industry which is the reason for the late late long days/nights and weekends. It can tend to be a young staff, mostly because of the crazy schedule, so "keeping up" has been on my mind. I don't want to let anyone down. One day at a time, right. :)

I work full time too. I have notice that with fatigue I get forgetful. But otherwise ok

Hi,

I worked full time with adjustments - Tue/Thur from home 8-4. I had thymectomy in Nov13 which found thymoma so I had chemo. Returnedto work 2 Jun on six weeks phased return. Plan to do my 'normal' hours starting tomorrow. I rest in the first aid room for at least half hour when I am in the office. My job is not physically demanding but can be high pressure due to deadlines and regulatory requirements.

I wasn't able to work full time for very long after my diagnose. I had a very active job that required me to maintain a fast pace. I had a lot of weakness in my legs so it wasn't possible. I had 4 months of short term disability, so I used all of it. After that I ended up resigning (after the doctor told me going back to work was a long way away) and applying for social security disability and was lucky enough to be approved on the first try. It hasn't been easy financially, but my health is more important.
Michele

Not since 2011 --Kerry

On leave to recover from surgery right now, but I do 30-hr weeks normally.