Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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mgadvocate 07/27/2012

For your information I have established "Honorary Members Memorial Site" on the "MG News and Links" group.
http://www.dailystrength.org/groups/myasthenia-gravis-links-and-news/discussions/messages/14688265

The first member is Henry "Curt" Miller. I included two post about the news of Curt's passing. You are welcome to go to either post to add you own comments.

I hope we do not have to any more members but the site will be for ANY DS Member who passes away. If you know of any past member that should be added to the site now, please let me know or feel free to do a post yourself.

I have asked DS if they have the ability to change a member's status to Honorary Member?

Bruce

adamrach 07/27/2012

Thank you Bruce for doing this.

cgreens 07/27/2012

Thanks Bruce.

Now Curt is immortalized. It may help people deal with the loss of a friend better, and we don't have to always post of him here. We can go there anytime and share memories.

That is very kind of you.

I will just hope there will be no additions to that group.
TJ

annkemp 07/27/2012

Thank you
I thinkit would help if we could anyway figure out how to post his advice
from the post any place so others coud read it. It is hard to think his advice isn't being read by new members.
Ann

bweeds 07/27/2012

Ann,
That is a place you could post such advice. Just copy it or the link and add it to the discussion. Because two short pieces were so powerful for some of us and applicable to everyone dealing with MG, I posted them as news at the top of the links group page. I think he would be tickled that people find his comments so valuable, when he often knew he was being so difficult.

As we post various topics in the links group, his comments do get added or linked and passed on. Although things slip off the main page and are forgotten if not lost, things we find important, and coukd be changed, can be added to the Links Group. There we try to link to previous discussions as well as helpful materials, so they do not get lost and can be condensed in links so they are more easily found. b.

deleted_user 07/27/2012

I haven't been on much and when I saw this topic I was wondering what was going on. I am very sad to hear about Curt's passing. Hopefully we won't be adding anymore names to this.
CindyC :(

Thirteenblessings 07/27/2012

What a thoughtful thing for you to do. Thank you.

txkiki53 07/27/2012

thanks Bruce!

such a good thing todo.... I see curt smiling regarding the impact he had on so many people.
Annette

deleted_user 07/28/2012

I am shocked and very sad to read of Curt's passing. Thank you Bruce for this post and honoring Curt with this site you have established.

I'm hoping everyone else is okay or better.

deleted_user 07/28/2012

This is Elizabeth,Curt's wife.I am so grateful that I can find consolation here, even after a week. I was fearful that I would be alone with my grief.
Thank you.Curt was always a problem solver at home and I see, the same from here.This site was important to him.I made entries for him when he was unable.
I was with him daily for 51 days. I saw him as the man that I married,I miss him.
Thank you for your entries to the guest books,too.
Yours,
Elizabeth
EMWBoston@comcast.net
http://applebeefuneralhome.com/book-of-memories/1267815/Miller-Henry/view-condolences.php
http://www.legacy.com/guestbook/timesunion-albany/guestbook.aspx?n=henry-miller&pid=158609794&cid=full

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