Well I know how you feel because sometimes I have the same problem.
Have you tried a very hot bath ,relaxing music or anything like that?
Sometimes when I can not sleep I put in the movie robin hood the cartoon and if I do not fall asleep during that then I am not going to.
hope this helps.
also talk to your neuro.
Chuck

A few years ago I decided that in order to get a good nights sleep I had to take a sleep aid. For years, I took Benedryl to help me sleep. I take a sleeping pill now. I had a sleep study and have had a cpap for about 6 weeks. I am anxious to try sleeping without the sleeping pill. A lot if people with MG use a cpap or a bipap. The doc could see that I had very shallow breathing. Since I've been on the cpap I have more energy to press through the fatigue to do "things".

Are you taking prednisone? High doses of prednisone, especially make it hard to sleep. I remember when I started on just 20mg of prednisone that I had extreme difficult sleeping.

A good night of rest is necessary for MGers.
Good luck! Sleep well.

I have trouble sleeping also, but I dont think its the mestonin. I saw a psychiatrist who prescribed a low dose anxiety pill, which really helps me go to sleep but I still wake up in the middle of the night. When I told him that benedryl helped, he said that benadryl interrupts the REM cycle and you wont be as rested. So, lesson learned there.

I think sometimes the MG just makes me feel physically uncomfortable. I wake up thinking.. is it morning yet, can I please just get up? I am historically an excellent sleeper.

Ditto on the prednisone. I dont sleep on that stuff at all.

Good luck!

Leslie

I think our lack of as much activity as before may make a difference.
I struggled and struggled. Then I cut out my third cup of coffee and I was able to sleep.
I was shocked.
Caffeine really impacts sleep.
On high doses of prednisone I had to take sleeping pills.

My sleep was interrupted constantly by my throat closing. I sleep much better with cpap and oxygen.
I take a .5 Xanax to get me off to sleep. Another thing that wakes me up is dry mouth. This is a problem with Lems and Sjogren's, but not sure if it affects those with mg. It was getting really bad and I finally stumbled across something that helps with it called xylimelts. You stick them in your mouth at night and they adhere to your gum or tooth and slowly dissolve throughout the night. I've only had them for about a a week, but so far, I have been sleeping for much longer periods and the sleep is more restful.

Thanks to all... Mestinon only... Have never experienced breathing difficulty, but am of the opinion that my breathing is shallow. Spirometry showed but slight impairment, and pulmonologist said my breathing was, basically, fine... (Of course we all know how MG makes a mockery of most such tests)... Drink 4-6 strong cups coffee throughout the day, including PM. I am a nervous type... Have always been a light sleeper. Benadryl helps me sleep. For now, will limit coffee consumption to 2 cups, to be taken before 10 AM. Will see if this helps...

Hi there....Well for me also cant remember the last time I slept good!! I wake up constantly and feel like Im in a fog, have weird dreams etc etc...I have been taking prednisone long term and am now down to 2.5mgs per day and i really think that has alot to do with sleeping problems.....Plus I have stomache issues that wake me up..Im the anxious type to so have tried to cut down on caffeine etc..hasnt helped yet but keep trying..Also neuro gave me Klonpoin a while back and they worked for a while now not at all sooooo..May try the benedryl..have never tried that....But again I still believe prednisone is the biggest culprit...And we sure need sleep with MG so I hear ya very frustrating for alot of us....Good luck...Jacki

I am having that same problem with prednisone. My pharmacist recommended taking Melatonin right before bed. It does sometimes help.

I used to be a firm believer in melatonin. But nowadays it just makes me jittery. Weird.