Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello everyone,
I have bene gone for a minute, but Im back with good news. For the past two months I have been using a drug called Hizentra. Its like IVIG that you can do at home, by yourself, on your own time. I love it!
It has been working great, right now I do it once a week for about 4 hours a day and see improvements within 24-48hours. My doctor states that I can do it twice a week if I need to but its a personal treatment that I can do myself and it works. And when I feel that Im getting weak I just do a treatment,
Im off prednisone! Im taking cellcept and this new treatment and have been feeling great!
Wishing you all the best....
I have bene gone for a minute, but Im back with good news. For the past two months I have been using a drug called Hizentra. Its like IVIG that you can do at home, by yourself, on your own time. I love it!
It has been working great, right now I do it once a week for about 4 hours a day and see improvements within 24-48hours. My doctor states that I can do it twice a week if I need to but its a personal treatment that I can do myself and it works. And when I feel that Im getting weak I just do a treatment,
Im off prednisone! Im taking cellcept and this new treatment and have been feeling great!
Wishing you all the best....
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This isn't really bipolar related but there is never anyone on the parenting groups, this is the most active group I've been in.My 6yr old son has really bad seasonal allergies and they're in full force right now. He gets a terrible cough; he coughs all day and all night, making it hard for him to sleep, and his nose runs.I've tried every allergy medicine, OTC and RX, and none of them affect his...
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...
Annette
You can put it in your arm, stomach or thigh/leg. I put it in my leg (more meat-lol). I have noticed this treatment is good for me because I work FT and go to school.
hugs,
sherry
The treatments last 4 hours and I do them 1-2 times a week.
I had a nurse come to my home and show me how to do it twice. Depending on your weight, height, and age.. the medicine is put in a syringe and then placed on a small pump with the tubbing of the needle. The nurse will show you how to take it out of the bottle and into the syrine, this is very easy. You can even do the setup the night before and come home the next day and start the treatment.
The nurse can teach a family memer, spuse, child or anyone you wish to assist you if you are uncomfortable in learning or sticking yourself, the needles are really small.
Please try if possible, Ive heard its cheaper then IVIG and you can do it when you want!
Let me know if you have any quetsons.
could You please tell me, where are you from? I'm thinking of using Hizentra, but looking for a doctor who could help me using it. Do you still take that?
I am glad you are having such a easy time with it and a great response too.