Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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xmas25 03/03/2009

I've being worked up for mg as I write .the dr's #1 pick is mg for double vision,weakness etc.I've been doing soso but this am when I went for a walk ,as soon as I started, the glare from new snow (12")blew my vision to horrible degree of dvision.I had to look at my feet to get home. When I got home I immediately became weak in arms and especially legs. I sat and everything slowly improved.I have noticed that as the snow melted away this winter,my daytime vision improved.Anyone have such a thing like this? Thanks

deleted_user 03/03/2009

Sun glare, being in a dark place then out into the bright light or even indoor bright lights kill me. You might want to get yourself some extra dark sunglasses, it will help. Rest your eyes whenever you can. When you see the double vision coming, close your eyes and rest them for a good 10 minutes or longer if you can..even if you have to pull over in your car to do it. When your doc's get you set up on meds, it should help the weakness but you'll need to pay attention to when and how you become weak. Plan activities when you are strongest and rest when weakest no matter where you are. I feel for you, I have about every symptom a myasthenic can get. I'm still learning about myself and the advice I offer is what has been helping me. I hope it helps you as well. Good luck and God bless.

Jules3391 03/04/2009

I have found that I have an intolerance to bright lights sometimes. When sitting at the computer at night I can't put the overhead light on because it seems as though a torch is being shone straight into my eyes. Same as peacequeen, going out into the sunshine after being indoors is also hard to take. I like peacequeen, have got the extra dark sunglasses and these do help.

I have to agree with peacequeen in every way. Plan your activities - my day is as busy in the morning as I my MG lets me be and the afternoon and night are not doing much at all. Rest in between any activity, even housecleaning. Don't do it in a day just do what you can one day with plenty of resting. Please know that you are not alone with all these weird symptoms from MG. Take care.

deleted_user 03/10/2009

I have the same issues. The bright lights also trigger migraines. I always have my curtains shut. I rarely have lights on bright, I have dimmers everywhere. I keep sunglasses closeby at all times. It is frustrating but prevention is best.
God bless.

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