Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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bear57 05/26/2016

Hello everyone it's been a while since I've been on here but I do still read the responses. I would like some advice I have been having problems with my gallbladder they have ran test it showed no stones but the function was down to 18%. The surgeon who spoke with me today told me there was a 80% chance taking it out would make me feel better and 20% it wouldn't help at all. He is aware of my MG and spoke to the anesthesiologist today. They both felt alright doing it but did let me know the surgery could because of the MG slow my breathing and with the muscle relaxers aggravate it more and I could possibly be on a ventilator for a few days. Now my question wanted to find out if some of you had this done or similar and how it effected you with your MG.
Hope everyone out there had a good day today.

Thank You

xmas25 05/26/2016

I've multiple procedures , 2 sameday surgeries and a hip replacement since diagnosed. Been general mg for 5 years short of breath on stairs occ.,walking too fast (haha). as long as anesthesia is aware and everyone agrees it's worth the risk maybe it's worth -?how much pain are you in? Pain meds long term to avoid surgery may have some risks depending on age etc. You are the one who makes decision - also gall bladder removal done in emergency can be more difficult vs elective. Have a great w/email if possible

MGOhio 05/27/2016

Call the hospital and get a "consult" with the Anesthesia people (MD, Nurse Anesthetist).

I just had sinus surgery under general anesthesia, and consulted with the Anesthesiologist a few days prior. Although he was not the one who cared for me while I was under, he took good notes, relayed them to the group, and the procedure went well. In fact, I'm going to get a copy of the Anesthesia Notes and keep them in my records, in case some day I need general anesthesia again.

Not sure what all they used, but I know he juiced me up with some Neostigmine (liquid Mestinon?) while I was under. Crazy to say, I felt GREAT when I woke up, as far as MG goes.

I will admit though, before the procedure they were hydrating me with IV Fluid (Ringers Lactate, LR, Lactated Ringers all same thing) and it made me VERY weak. I initially thought it had Magnesium in it ( a no-no for MGrs), but it doesn't.

Good Luck, and keep us posted. Take Care.

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