Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Any body take Fucoidan for MG ? Its a Cancer fighter and works well on your immune system. I am currently having some stounge symtoms of MG. I am drinking a product called LIMU, 6 oz a day, hoping this will help. Going to make a app to get tested. Wish me luck......
Your posting - was the first time I had heard of Fucoidan.
I don't think Fucoidan is regularly used, to treat symptoms of MG.
But if you feel better, while taking it? Nothing wrong with that.
The thing to check? Is whether or not - Fucoidan has a lot of magnesium in it. Most MG'ers - have to avoid magnesium.
If you suspect that you have symptoms of MG?
Yes - get a blood test, as quickly as you can.
Your local family doctor can get you started - by ordering this blood test, which looks for something called - an AChR antibody.
Many of us MG'ers test positive - for this AChR antibody.
(But many other MG'ers - do not test positive, on this one test. They have to go on, for other tests as well.)
Right now?
In a situation, where you have - not - been diagnosed yet?
And the High Heat of Summer - is just about everywhere?
It is very important - for you to Keep Well Rested.
Keep your physical labor - to a bare minimum.
(I ended up in the hospital, because I thought I could ''tough it out'' - that I was stronger than any disease. Well? MG showed me - who was tougher.) (Eventually, I got a little smarter.)
Yup - get the doctors going.
You see. there are some other medical conditions, that mimic the symptoms of MG. You want to be under the care of a competent doctor, just to sort things out.
If it turns out, that you do have MG?
Don't be surprised - if you find you have to travel a little ways - to a neurologist who is a MG Specialist. There are not many neurologists - who are also MG Specialists.
But most of us - can find a MG Specialist within several hours drive. I live in southern Maine. There are only a handful of doctors here, who have ever seen MG before, never mind know how to treat it.
I travel to Boston, 2 and 1/2 hours one-way, where I am lucky enough to be under the care of an experienced MG Specialist.
- Ross
Please keep us posted on how it is going. You are the "guinea pig" with this and I had never heard of this, so thanks!
What I see:
"F-fucoidan was reported to inhibit hyperplasia in rabbits"
http://atvb.ahajournals.org/content/22/10/1604.full.pdf+html
"induce apoptosis in isolated human lymphoma cell lines in vitro"
http://www.ncbi.nlm.nih.gov/pubmed/15609279
I don't know how it could play out in MG, and I cannot see anything bad about taking this at this time. Seems to be more of a potential help for cancer, but perhaps it could have multiple applications.
Interesting...thanks again and keep in touch.
TJ