Hi, and welcome!

Potassium is your friend, especially if you're going to be taking steroids. We need it in order for our nerves to work properly, and if you end up taking steroids, your body loses potassium. It's definitely something to eat liberally.

My tea , hot or iced, in the afternoon gives me extra energy! I try to stay on a high veggie high protein diet. Sugar, though I love it, makes me I'll. welcome to the group.

Some say a diet works for you, others say it won't. I can give you my opinion and you can try different things. I've learned different things from all the folks here. I have eliminated junk food from my diet. Chips, soda candy, all that. I have become a juice fanatic, V8 low sodium, apple juice, orange juice, tart cherry juice, all healthy juice. I just got a juicer for Christmas, and I am planning on making my own juice. Look at http://juicerecipes.com/ . A lot of interesting recipes there. There's even ones for immune systems. All the meat, chicken, and fish, I try to do organic, but it can be hard to find and expensive. My son and I hunt, so I have been eating a good bit of wild game (venison) in place of red meat. More fish and chicken instead also. I was having problems with digestion and I switched to almond milk, and lactose free milk. I recently been drinking regular milk without any problem. Vegetables- this is the big one for me. I always ate your run of the mill vegetables, corn, green beans, peas, ect. Now I eat 95% of my vegetables raw, salads everyday, snack on raw vegetables, nuts (almonds, walnuts, sesame seeds, sunflower kernels, cashews, pecans). Fruit also makes a good snack. I try to stay with berries mostly. I love apples but every time I eat them, I was putting peanut butter on them and it would be so hard to digest, my stomach would ache for 4 straight days. Don't know if it is apples or the peanut butter. Finally, yogurt. One serving every 3 days. Not light, or sugar free yogurt or any of that crap. Regular yogurt (any flavor you choose). It's a probiotic and might benefit you.
Being on a healthy diet may help you in time, or it may not. I'm still trial and erroring things, but compared to where I was 5 weeks ago to now, it is working for me. Considering there is no medical cure for autoimmune Myasthenia Gravis, I don't think that it hurts to try something different.

So sorry about you diagnosis.
Welcome to the group.
Caffeine really helps me so I do drink coffee. The rest of my intake is as healthy as possible.
No gluten, dairy and only natural sugar.
Weight watchers is best for me since I am loosing weight. I hope I will feel better and better the smaller I get. I figure if I can tell the difference between heavy and light silverware .....being thin can only help.
I wish you the best in your acceptance of this change in your life. I know it is very hard at first. I remember feeling like I was a cat in a room full of rocking chairs.
Ann

Caffeine - good
Alcohol - bad
Chocolate - good
Aspartame - very, very bad
Fresh vegan choices - very good (but I cannot swallow them)

Those are just some of mine. Eating a good diet is a cumulative rather than a daily thing, so there is some wiggle room with the less horrible of the baddies, but alcohol has immediate deleterious effects on me just the way the absence of caffeine does.

Thank you all who answered so far, although I still wonder about magnesium, ginger, Omega 3-6-9, and a few other specifics on my list. I already eat a very healthy diet (although I've had a few treats over Christmas). I worked with a nutritionist a couple of years ago to help me lose weight and have stuck with the nutritious meals with little junk since then. There is no question that I feel better when eating healthily, but my question is about the specific things that are bad or good for m.g. (Sorry that I chose the same avatar as SeattleWriter; the choices were limited).

Somewhere I read something about cinnamon being bad.
I believe vitamin d is good.

I eat ginger in soups and tea

Cinnamon is an antiviral, antifungal, and antibacterial machine, so it does more than just boost the immune system it actually fights the pathogens that cause illness.

This comes from a website that talks about immune boosting foods.

ginger seems to be fine
be gluten conscious, but don't get carried away.
caffeine in moderation to avoid anxiety
COMPLETELY AVOID QUININE
alcohol once stable and in a controlled environment in moderation
magnesium in foods you eat is fine and necessary
potassium is fine
omegas ok as fat supplement if not getting enough good fat in diet

mytwocents

T

For those who have trouble swallowing cooked veggies that are then mashed helps.

Cinnamon can cause vasodialation so for some with higher BP that might be ok but for those with low BP can be a disaster.

I take zinc to improve my sense of taste and smell. I do not do well without it. I also take vitamen D as I like many people have low D without it. I take Metanx which has partially processed B vitamens for my neuropathy pain with very good results. The odd thing is I could never take B vitamens in other forms without nausea but somehow this type that is partially processed works very well for me.

I avoid magnesium per my neuro's advice. I also do not take calcium as it causes all my joints to hurt. Not sure why.

I avoid all artificial sugars and use hardly any real sugar. I try to keep carbs low and proteins high as my body feels better I actually do better with veggies then fruits as the sugar in regular fruit can seem too much for me I do eat half a banana a day I am on a soft diet for dysphagia and bananas are the only fresh fruit allowed.

Hi all,

I saw my MG specialist yesterday and asked about this list of foods and vitamins, whether there were some to take or avoid. He said that *in my case* the myasthenia is not sensitive enough to be affected by the amount of magnesium in the Cal-Mags or multivitamins and that he did not think adding or avoiding the other foods would matter.

I know that every case is different, but given that I had the opportunity to ask the specialist, I thought I'd post a follow up message. I know that there are other members of this forum who cannot tolerate magnesium or have been helped by other foods and vitamins.

Hope

Please make sure you avoid Tonic Water. My Neuro said there were no limitations to my food intake also. They don't have every answer for every situation, because they don't know what is in all of our foods. My Neuro did give me a list of medications to avoid and the quinolone family is a big red flag for myasthenics. Tonic water and you should not be in the same sentence.

"Post-marketing surveillance has revealed a variety of relatively rare but serious adverse effects that are associated with all members of the fluoroquinolone antibacterial class. Among these, tendon problems and exacerbation of the symptoms of the neurological disorder myasthenia gravis are the subject of "black box" warnings in the United States"

https://en.wikipedia.org/wiki/Quinolone