Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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musical99 03/15/2014

Hello everyone,

Just wondering if anyone uses essential oils, how they use them and what types of plants/herbs are the best. And what might be toxic for MG?

I know that I am dependent on my western medicine but I want to try alternatives to try and balance my health as much as possible but scared to bump the current balance I have achieved with Mestinon.

I have heard of a health alternative called serrapeptase and wondering if anyone has tried it?

I am happy to hear for and against debates re alternative remedies or any recommendations.

Hope you all have something wonderful happening in your day, even if it's just a text from someone who cares or visit, but if not, here is a great big virtual hug from me with an extra big squeeze. Xx

larissam 03/15/2014

I use lavendar oil to make air freshener and as an aid for sleep ( a few drops on a tissue by my bedside table ). I find it does create a calming effect.
In terms of medicinal use, no. Like you I'll continue to rely on traditional western medicine.

Thanks for the hugs. ;)

SeattleWriter 03/15/2014

I use tea tree oil as a disinfectant on my skin for cuts, bug bites, and--yes--the occasional steroid-induced pimple. But, like larissam, I think it's best to think of these things as add-ons rather than alternatives to traditional medicine.

Babette1 03/15/2014

I have recently been researching the medicinal uses for essential oils. While there are many companies who produce 'essential' oils, I'm learning that some are not actually pure. I'm learning the distilling process and the plant growth is crucial (is the oil from the first press only and quality control of seeds/plants to ensure no pesticides or GMOs are used).

I am using some essential oils for skin (rose), muscle aches (peppermint) allergies and sleep (lavender), but continue to research before moving more deeply because it was pointed out to me the primary purpose of using essential oils is to boost the immune system, which in MGers would increase the attack on our bodies.

There are some facebook groups that have a lot of really good information; that's where I was cautioned from another MGer to proceed carefully.

Like you, I'm relying on my doctor and western medicine to treat my MG; however, trying to take a more organic approach for eating and general body care.

Keep us posted! I'm very interested in this approach.

musical99 03/17/2014

Thank you for your feed back

Keepsonablessin 10/17/2016

I see that your post was 3 ago, and wonder what you have tried. I'm looking into the theory that autoimmune diseases and cancers are all caused by toxic overload. It sounds reasonable. I'd like to get rid of as many toxins (chemicals) as I can from my food, my personal care products, cleaners, air, water. I'm getting recipes for making my own natural products for all kinds of things online. Will I feel better? I don't know yet. Will it make me feel like I have some measure of control over what mg is doing to me? YES! Will it give me a purpose for each day? YES! WISH ME SUCCESS!

GLORIA 10/24/2016

Thanks for the hug.... I really needed it. MG is no fun !!

Hennie 01/02/2018

i use peppermint oil for my too frequent sinus infections. it works for me, slower than medication, but i always prefer:)

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