Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
After much thought I canceled an appt. scheduled for tomorrow with Mayo Clinic in Minn. Knowing that there is no cure for MG and having lived with Ocular MG for over 60 years I decided that the expense of a 14 hr. drive and spending a week at Mayo Clinic was probably not the best use of my time or money. I now have an appt. at the Univ. of Kansas Med Center (3 hours away) with neuros who are a little more familiar with MG because the MG Foundation is nearby and a lot of MG patients are referred to them. When I spoke with them yesterday concerning my upcoming appt. they told me that I was scheduled to have an EMG. The only test that I've ever had was the Tensilon Test which I think is now obsolete. My symptoms have remained ocular over the past 60 years and I've taken low doses of Mestinon thru the years when it would come out of remission. I've even wondered if perhaps I was misdiagnosed but Mestinon does help the symptoms so I guess that confirms that it is MG. I feel guilty when I see other people's problems on this site and yet feel very blessed that mine has never gone beyond ocular symptoms. You might tell me about all three types of EMG? Needle emg, surface emg and single fiber emg.
Kimber
Lorraine
http://www.youtube.com/watch?v=P04eeaLB4Wg&feature=relmfu
I am not sure if this is legal under the Geneva Conventions for Torture ;-)