Hello everyone, I am new to this group but not new to Myasthenia Gravis. I have had this disability for 34 years now. My eyelids were completely closed and I taped them open each morning for twelve years. I am retired due to food poisoning and undergoing five plasmapheresis treatments. I have had my Thymus gland removed, which stopped the disability from advancing without taking steroids. I too take Mestinon but found that without steroids to help, the symptoms were not getting better. Imuran is a miracle medicine for me. I was taking Imuran for two weeks and after twelve years my eyelids started to stay open on their own. I have been taking this medicine since 1996.
This disability can be very very ugly!
I've been thru all of the above symptoms MG can throw at you especially taking Imuran.
Ask your doctors about Imuran and get a doctor from the MDA, which specialize in our disability. Every symptom there is for MG, I have had, and my vision is crossed over. My right eye sees the image in the upper left and my left eye sees the image on the right side. I cannot move my eyeballs up, left or right and I do not blink   I have had breathing problems during my sleep.  I was told by a doctor after taking a sleep test; I stop breathing twice, up to 19 second while sleeping.  I get muscle weakness more when I am not active.  I have no support from family and the fake people that are around me only make nasty comment about my eyes and the way I keep my head tilted up because my eyelids droop, almost half way sometimes.   I also care for my husband who was diagnosed with Multiple Sclerosis five months after we were married, 38 years ago.  I pray every day that God allow me to get up and do for myself and others.   Get a good doctor you will need one. You may ask why take Imuran and my eyes don't move; well it’s a Blessing not to tape them anymore.  I need a friend.....
Let me know if I can help.......
Tricia