Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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jstlitlome 09/08/2014

I am new to this, and actually "officially" have only had bulbar and eye problems, but now I'm paranoid.

After trying to be superwoman and moving our bed around the room (we got a new bed and they put it in the wrong place) I felt very tight in my chest. Very strange sensation and very different from what I feel with anxiety. Almost asthma-like. But I sat for an hour or so and it got better.

So because it got better does that mean it was or was not MG? My impression is that it gets better with rest, but then everyone says go straight to the emergency room so I wondered if it is different when it comes to the lungs?

anyway, newbie question.

THanks!

Leslie

SeattleWriter 09/08/2014

might you actually have asthma? I ask because I deal with respiratory weakness as one of my primary symptoms, and have asthma also--the two sensations are really different for me. Asthma I experience in my chest and throat, MG in my diaphragm.

jstlitlome 09/08/2014

I have had asthma in the past. Anything is possible. lol

annkemp 09/08/2014

Sure hope you can get it all under control.
If your resting helps you are doing well.
I wouldn't let it get to that point again if possible.
My perception of this ...it is like all the rest of our muscles. When we over work, mg kicks in and we get that body part weak.
I had a crisis and two severe asthma attacks.
Not fun.
Don't move furniture again without help.
Hopefully with rest you will get strong again and realize how careful we have to be.

annkemp 09/08/2014

We go to er when immediate rest doesn't help.

SeattleWriter 09/08/2014

It might be worth seeing a pulmonologist just to see if you can get some disambiguation between symptoms. If it turns out to be asthma, that's no joke, either, so getting treatment for that could help both those symptoms and the MG. Can your neuro refer you to a pulmonologist for a function test?

jstlitlome 09/09/2014

Thanks all. I am going to a counselor tomorrow and call my neurologist to get this ball rolling and get some questions answered. I really hate that every little feeling is scaring me! I am NOT prone to hypochondria until this year, and now I've found out that I may have actually been worried about something real. I'm not sure how to handle that and not drive everyone around me crazy.

I'm sure I'll get the hang of it. I will also have more questions for you!

THank you!

Leslie

chuckie1 09/09/2014

LESLIE
IT IS BEVER A BAD IDEA TO GO TO THE E.R. BUT IF YOU DO NOT AND YOU DO NOT GET BETTER IN A HALF HOUR OR START TO GET WORSE THEN JUST GO IT IS BETTER TO BE SAFE THAN SORRY.
Chuck

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