I don't think my immunosuppressants make me feel anything much at all. You'll have to see how being around students affects your health in terms of exposure to illness. My hair is falling out a bit, but my neuro said it was a combination of Imuran and steroids doing that. I don't know the drug prescribed to you. Have you tried others? Imuran and Cellcept seem to be the standard choices I've seen here. Sorry you need to be here.

I take Imuran and over time it has lessened my exhaustion levels. As Elinora says you have to watch being exposed to any illness or bad personal hygiene, ie coughing, sneezing without covering their mouths, etc. With the lowered immunity you seem to catch any cold quicker and take a lot longer to recover from.

I have no experience with Tacrolimus but some people here might be able to be more specific to that drug.

Tacrolimus will not lower your white count as others (imuran, cellcept) but you do need to be careful being around illness due to MG exacerbation (worsening) with illness. Did your neuro set up standing tacrolimus blood trough levels (how much is circulating in blood) and kidney function? I have mine taken monthly.

I am on my second try with tacrolimus. My neuro and I decided to take me off of it the first time due to some malabsorption issues. I could not get my trough levels high enough but I tolerated it well with no side effects. This time we are trying liquid tacrolimus. I could not tolerate cellcept due to ulcers and imuran due to low white counts.

Hope it works for you!
Hugs,
sherry

Thank you for sharing! The mestinon is working well most days. I just started some antibiotics for a tooth issue and now the mesty doesn't seem to be doing much. I think the tooth infection has me down right now. Hopefully it will clear soon so the mestinon will work well again.


Thanks for sharing!!
CarlyM

If you are sero - positive, I would give cellcept a try if possible. Your treatment plan can greatly depend on your symptoms. You can't risk it sometimes.

Peace

Carly,
Both the infection and the antibiotic could be making your MG worse. Actually, I am inclined to think when your MG is acting up badly without ANY explanation, have your teeth checked! in additioon to regukar dental visits. An electric toothbrush is not a luxury, it is a necessity. We often don't have the energy at night to do proper brushing, never mind flossing, holding our arms up shortens and weakens our efforts and if anyone really likes to go to the dentist, I don't think they have mentioned it! Chronic dental problems keep our immune system revved and the antibiotics to treat it and the topical anesthetics are all risky (see medications and myasthenia in the links group or at myasthenia.org). b.

I just had an infection. I was shocked how my MG symptoms got worse.
Ann