Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Annie128 10/06/2013

the other night I was having really bad chest pains and im wondering if its mg related...
I took my cellcept and laid down in my bed to go to sleep when it started to hurt to breathe and the sides of my ribcage were cramping up. I felt it in the bottoms of my lungs but after several minutes my whole chest was tight and crampy and the pain was traveling up my throat. it felt like heart burn but much worse!
nothing was out of the ordinary for me but the pain didn't subside for 45 minutes
the cramps was worse on my left side which is the side I have my port implanted on (right below my left boob) so could it be a problem with my port?
I also thought about my thymectomy that I had in June but I doubt its from that because so far I have had no issues from that surgery and it was months ago that I had it done.
It fely very similar to a reaction I had in hospital one time during a plasma exchange after being given mestinon all through the previous night by mistake. but this time nothing is different about mestinon or any other medicines so I have no clue....
Has anybody experienced chest pains from anything mg related?
Thanks,
Annie

ahpotts72 10/07/2013

I have to admit that this has happened to me and I figured out that I can't lay down immediately following my cellcept dose. For some reason it gives me such horrible heart burn and chest pains. It also changes my breathing habit while sleeping because it hurts so much. It's probably not related to your port but just in case you should contact your neuro tomorrow to get their input. I hope that it stays away. Keep us posted on how you are doing.

Big hugs
Angie

Bamboolilly 10/07/2013

Interesting....I've been having uncomfortable feelings in my chest like nausea, but not nausea ever since my Cellcept was increased. Heart burn like, maybe.
Be well,

mathewsc3 10/07/2013

I always take a nexium before I start my regiment it can help

ray2me 10/07/2013

Hi Annie , I had the same problem . With me it was blood pressuer fluctuations . Blood pressure would raise to 160 when I layed down , 120 when I set up , and 108 when I stood . The high pressure when I layed down made me feel like I had just ran 2 miles my heart felt like it was really beating hard but when I was on a ekg it showed to not be true. Doc increased mestinon and it took a few weeks but went away. I hope for the best with you, Charlie

bweeds 10/07/2013

Annie,
A lot of us have esophageal problems. Here are a couple of articles that demonstrate why:

http://www.dailystrength.org/groups/myasthenia-gravis-links-and-news/discussions/messages/16515688

The are in our Links Group where we hide a lot of our goodies, scientific articles, interesting, helpful and entertaining discussions etc. You can reach the Links Group on the bottom right hand of the page. Actually we established it to keep these things from just sliding off the main discussion page after which they are difficult to find.

Be sure and drink plenty of liquid with your medication and don't lie down right away. Don't swallow with your head turned either if you have that kind of problem. (All from experience, sadly). b.

Annie128 10/07/2013

hmm I never thought that it could be from my cellcept but I do remember several times where I took my cellcept and immediately went to bed after and had a really fast heartbeat... I make sure I take my cellcept a little earlier and see if that helps. I had a plasma exchange today where I mentioned the chest pains and they weren't worried about the port either. They said it was most likely indigestion..

Thanks guys!
Annie

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