Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Does anyone know if decreasing bone mass or density is connected with MG ? When my MG went general and I came out of remission it was discovered by an MRI that I had fractures in my right Femur. I had not fallen or had any injuries , it just happened I am awaiting B one Scan results now .
I know of no direct correlation with MG. The risks of having a lower bone density and fractures that are known include age, family history, small size ( height and weight) sex ( postmenopausal females particularly) medications (prednisone in particular for us) inactivity, and smoking. Here is a link to one of the many FRAX calculators.
://www.rheumatology.org/Practice/Clinical/Clinicianresearchers/Outcomes_Instrumentation/Fracture_Risk_Assessment_Tool_(FRAX)/
That said, there are medical problems that result in spontaneous fractures that should be considered. When you do the MG survey ( please do) mention this. There are many symptoms we share that are "not MG" and although we know better, our doctors and insurance companies may not. So if MG itself is a separate risk, then bone density bears closer watching and problems that arise that could be attributed to spontaneous fractures need closer investigation and insurance compensation.
I have good bone density of hips (do Tai Chi) and osteoporosis of the spine--however, i have all the other risk factors apart from inactivity and I have never smoked ( unless you count those two cigarettes 40+ years ago.). :-) b
Claire