Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I doubt there are many who have had an IVIg infusion have regretted it. It's certainly expensive and here in the UK not a lightly given treatment. In my case, I had three sessions as I recall (it was about ten years ago hence the hesitation). That was in the early days when my long-term treatment was being evaluated. I went through a fairly rough period at about the four to six-month point. The procedure is fairly straight-forward, there are risks associated with it, but as usual, you need to weigh the benefits vs the risks. It is very quick acting, but the results only last a month or so. In my case that was fine, we were waiting for the long-term medication to kick in.
if your neuro as advised you to have ivg's, they must be a need
as for a need beleive me their is allways a need,
whitout it i may not be today giving what it as done for me.
i had ivgs twice, one in 2012, and the last one in 11/2017 after my worst relapse that allmost killed me.due to various factors, excess stress, activities and other factors
but ivg's should not be used for 1 or 2 times,as you will be loosing money and health.
their is a protocol that as to be followed, generally it is done a full year.
mine lasted for 14 months has needed, i am at this stage in full remision since july 2018. and i really fill great
depending in your control of the factors i mentioned, it can last years before you may need it again for few years.
against what may some people tell you, side effect at least on me where none, ech infusion last 3 to 5 hrs, depending on your requirements.
on me it lasted 5 1/2 yrs. i i hope it be the last one
iam 79 1/2yrs old, and hope this is tha last for my life entirity
best of luck (fighter)
I have not had a near-death experience, at least not from MG, although I was in the British Army for 20 odd years. I'm not 79 and a half going on 90 either, just 76. Not even in full remission, whatever that might be.
Does that qualify me to respond on here to the questions of others? I think so, although perhaps without the vast experience and the highs and lows of others - I just have MG, had it for a little over ten years and other than the first year it hasn't really had much impact on my life - for which I am very grateful. No drama here and I do my best not to give drama to others.
How on earth can you, Andre. say that the OP needs whatever, you've never met him!