Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I want to say a big thanks to everyone for their support to my "not coping well". I read and re-read all the replies several times this week. It helps so much to have other simply understand.
My poor family tries but I look the same to them, yet I feel nothing like my old self. I'm trying to take it slowly, which isn't easy for us that are used to forcing our way through.
I really fought against taking the pred. but admit it seems to be helping. I am still having "larger reactions" emotions, that I am now referring to as steroid-rage. lol. So far my husband hasn't called a priest for an exorcism....yet.
In any case, I just wanted you all to know how much I appreciate your support!! especially during my despair.
Big Hugs and thanks to all!
My poor family tries but I look the same to them, yet I feel nothing like my old self. I'm trying to take it slowly, which isn't easy for us that are used to forcing our way through.
I really fought against taking the pred. but admit it seems to be helping. I am still having "larger reactions" emotions, that I am now referring to as steroid-rage. lol. So far my husband hasn't called a priest for an exorcism....yet.
In any case, I just wanted you all to know how much I appreciate your support!! especially during my despair.
Big Hugs and thanks to all!
One of the worst side effects for me with prednisone was the moodiness , a little anger and a lot of emotion and for us guys , well not always easy dealing with emotion unless it's a sporting event ha ha.
Keep it up Elle , one day at a time when needed as I was just discussing that with another friend.
Chris
Roid-Rage is very real and is normal. Aside from the steroids you are still trying to come to grips with you diagnosis and the changes in your life. We've all gone through it and we know what you are going through.
I am grateful that you are finally seeing some improvement. HUGS and keep it up.
Angie
I have to be honest! After nearly 2 1/2 years of taking those little white pills I still hate them! But that love/hate relationship has seen those pills give me much much better health than I would have had without them. When I had a setback in November it was an increase in prediscone that allowed me to leave hospital. I hope they help you like they helped me. One day I hope we can end our relationship but in the meantime those little white pills give me a manageable life. No not the life I had but one that gives me many many things I am grateful for. I'm glad the hear the prediscone is helping you. Gez