Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi everyone,
My latest adventures in medicine include a referral to see the Arrhythmia Clinic docs next Monday. The last time I was there I was just starting Mestinon and feeling so much better.
This time I've been having dizzy spells that accompany huge palpitations so it might be time for treatment. I'm not likely to agree to let them ablate the secondary pacemaker, which they told me over a year ago was very near my normal pacemaker, i.e. could kill me.
I'm wondering if anyone else has heart rhythm problems and what med do you take? I also have a rare calcium disorder and may not be able to take calcium channel blockers. I'm waiting to hear from my calcium online support folks for that option.
All my electrolytes are in great shape for now and the spells and palpitations were definitely better over the summer when my Vitamin D is a little higher. I've worked so hard with various specialists and my naturopath that croaking from a heart problem would be a real shame!
Flutebell
My latest adventures in medicine include a referral to see the Arrhythmia Clinic docs next Monday. The last time I was there I was just starting Mestinon and feeling so much better.
This time I've been having dizzy spells that accompany huge palpitations so it might be time for treatment. I'm not likely to agree to let them ablate the secondary pacemaker, which they told me over a year ago was very near my normal pacemaker, i.e. could kill me.
I'm wondering if anyone else has heart rhythm problems and what med do you take? I also have a rare calcium disorder and may not be able to take calcium channel blockers. I'm waiting to hear from my calcium online support folks for that option.
All my electrolytes are in great shape for now and the spells and palpitations were definitely better over the summer when my Vitamin D is a little higher. I've worked so hard with various specialists and my naturopath that croaking from a heart problem would be a real shame!
Flutebell
Good luck
Chuck
I do get weaker when my potassium is 4.0 or lower. My family doc sees it the the range (3.5-5.5) and says I'm fine but my naturopath noticed the relationship to my hospital visits for trouble breathing when my levels were at the low end of normal. I do take potassium supplements and eat a "bowl of potassium" as a bedtime snack each night - banana, pumpkin seeds, nuts, dried fruit, etc.
Interestingly I just got my magnesium tested last week. I convinced doc to do red blood cell level too; it was near the high end of normal, the regular test, the low end of normal. So everything we can measure is in a good range. Found out yesterday that alcohol (even half a cider) makes the palpitations worse when I was attending a work event. Oh, well.....
Flutebell
If I could figure out a way to retire on disability and still be able to travel, I'd do it. I'm sure I'd feel a lot better with more rest and less stress.
Flutebell