Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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bearboy 10/27/2013

Hi, I'm new to this- was diagnosed some 10yrs ago with possible MG, 0 antibodies, droopy eye , vision issues, could not hold arms up to wash hair etc. then progressed to heavy legs, slurred speech. Settled with mestinon and rest- now it is back. This time my elbows hurt if I have my arms up to do eye brows etc. I'm sleepy all day and awake all night, hot flashes (could just be age!) . Waiting on MRI results, new neurologist thinks maybe MS.
I get brain fog to, lose peoples names (like work partner) feel like I'm 90! Stiff fingers and all. Does any of this sound familiar?

Barbel 10/27/2013

I have generalized MG with weak arms and legs, droopy eye. I am sorry that you are having symptoms again let us know how your test results come out. Also, I have brain fog, as if just being the way that I am isn't enough! HA!

bearboy 10/27/2013

Thank You- see DR. on the 8th for nerve study and results of MRI. Hope the fog clears for us all! lol

ray2me 10/28/2013

Sounds like me , except the hot flashes

Tim62 10/28/2013

Yes, to all the above except hot flashes. Hope you get a diagnosis soon. Wishing you better days ahead.

annkemp 10/28/2013

Do you have a job that requires you to use your arms a lot? or type?
Are you leaning on your arms too much? I find any part of my body that gets over used gets weak.

Bamboolilly 10/28/2013

Welcome! I used to get sweats at night...I connected it to my Mestinon. Now my dosage has dropped, I don't get as many. I used to take timespan at night.
Wishing you well on this journey. Greatest group here :)

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