Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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CarlyMichelle 09/23/2013

I know some of us MGers also have POTS. Today I'm seeing
Dr. Suleman who specializes in autonomic issues. Anyone have
experience with this M.D.?

Thanks for sharing,
Carly

deleted_user 09/23/2013

I don't know the doctor your asking about. Actually, it would be difficult under any circumstances, because you didn't mention the city or state where you live. Nevertheless, my experience with doctors has been generally been a process of building a relationship, or not, with them.

Its also possible that different people may have different experiences with doctors, unless he/she is a complete jerk. It may be helpful to write down some questions you have about how she/he view treatment of MG.

Good luck. I'm off for my IVIg infusion.

Bob

unsure81 09/23/2013

Sorry - I am no help here as in the UK, but just wanted to wish you luck :) Let us know how you get on.x

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