For me, the vision issue is tricky. It is mostly blurry but I do have bouts of diplopia (double vision). This may contribute somewhat to the frequency of my headaches, as well.

When I was on high doses of Prednisone it was "Ok" and the mestinon only helps a little bit. I am on 60 mg of Mestinon four times per day, 1500 mg of Cellcept twice a day and I am now down to 10 mg of Prednisone each day. My vision has improved the most since the combination of the three meds but it's still bothersome. My vision is best first thing in the morning and worsens throughout the day.

I also deal with many other symptoms but as far as my vision issues go, I basically just live with where I am currently. I wish I could be of more assistance. I know this is something that a lot of us struggle with. I hope you find some answers for your son. Hugs!
Angie

Hi there....Mine has mostly been ocular since the beginning but do get many other issues but that is the biggest so far...I started on mestinon very low dose and 7.5 mgs of prednisone...that I believe and thymectomy really helped the vision issues...had to stop mestinon due to BAD stomache issues so now down to 2.5mgs of prednisone...So far has kept vision problems under control but as Angie said it does return at times the double vision mostly..And is mostly when Im tired at night or just all of a sudden during day..But for the most part been pretty good...I to just basically know it will return at times and deal with it best I can. I too wish I could be more help but that is my story...Heres hoping you find the best meds and treatment for your son!!! Your a great and loving Mom, an inspiration...Take care....

Is his vision better in the morning?
If so I do believe the best medicine for eyes is resting the eyes in Addition to treatment meds he is currently on which if I remember correctly is 60 of prednisone. Is that right?

I, like your son, recently had thymectomy. I am currently on 30mg a day of prednisone, which I am wishing to bring down but due to some unrelated issues will not be able to right now, and mestonin 60 mg 4x a day..

The mestonin seems to be the drug that helps with my vision, I time my driving and vision heavy activities around taking that pill.. seems to be 30 mins later and then mestonin takes effect.

Rest, although certainly part of the treatment program has not ALWAYS worked for me, even overnite rest doesn't always make an impact. Sometimes it does, but sometimes it doesn't.

Hopeful that the thymectomy could take away ONE symptom, any of the many would be nice... so far... not so much... actually in some cases worse than before surgery, but it is what it is.. just got to keep moving forward..

hope he is doing better soon.

Maureen

I have double vision every day, but not always the entire day. I take mestinon 180 mg timespan twice a day. I also take 60 mg of mestinon as needed if several symptoms are active and the 180mg seems to be wearing off. The Mestinon helps my double vision somewhat. I can usually see clearly to read or use the computer, phone, etc. However my distance vision is always double therefore I am unable to drive. Even though I take a mestinon 180 every night, sometimes I still wake up with double vision, so I don't believe resting my eyes makes any difference for me. Only the Mestinon has helped and that is temporary since as the Mestinon wears off my vision worsens. Resting my eyes has never worked for me. My vision does not improve until about a half hour after I take mestinon. I told my opthamologist about reading and using computer a lot and asked if that is making my vision symptoms worse and he said no. Everyone is different and this is just my experience. Hoping your son will find remission.

Mestinon did not clear up my vision completely. Only after taking Prednisone has my vision totally cleared up. Taking 10 mg every other day now after a larger dosage to begin with gradually decreasing to where I am now. I am pleased that I have my vision back and the side effects of the Mestinon and Prednisone are a bit of a challenge but I will take those in exchange for my sight and feeling better.