Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I tried to walk as much as I could. Sometimes not very much, but most days I could do some. In the cold winter of Minnesota, walking indoors, pushing a shopping cart at the big mall or big stores was easiest. The interesting items to look at in the stores motivated me more than an exercise machine. There were benches to sit down most places--so one could recover too. Being retired helps.
If you don't exercise, it is easy to lose muscles and condition, so even a little is better than none. I don't think you need to push yourself to do strenuous exercise, but modestly trying to do things is good, and probably some strenuous exercise when you can is likely fine too.
There is some info at
http://www.myastheniagravis.org/mgfi_exercise.aspx
Good Luck!
I'm looking forward to hearing what others do and maybe get some ideas. Hope you are doing well today.
I have a treadmill and can walk 1 mile in 20 min's. LOL, I used to run 5k's. also, I have an old telephone pole outside that I use as a 'step' exercise. it's higher than regular steps. I'm up to 28 steps on each leg. I started out at 5, so I'm doing pretty well. I have 2 lb wts that I'm going to start with while sitting on a balance ball. LOL again - I used to lift 20lb wts while standing on a Bosu (rubber 1/2 ball)doing lifts. so it's really about starting -something- and working up to more. If I had access to a pool, I would swim... Ann says that has helped her a lot.I believe my running days are over as I don't want to have a moment of imbalance, and fall.
I think that you could do whatever you were doing, but on a very small scale. That has worked for me. I have a longgggg ways to go, but I am happy that I can do something (not every day.)
Be well,
The key is to know your body. I would not exercise in high humidity or over-exercise. Also I have a problem with my ankles that comes from the MG and if I overdo it, I can barely walk.
The book by Henderson, "Attacking Myasthenia Gravis" (2002), the doctor is a huge proponent of exercise as a way of conditioning yourself against the effects of MG. He has a trainer come by his house at 5 a.m. to lead him in workouts!
Henderson is a retired doctor and quite wealthy, so this is not an option for me. But if I had my druthers I would quit my job and spend several hours in the gym every day.
Thanks for the inspiration -- I am off to the gym! ~Joe
My muscle tone has declined tremendously, over the last 8-months.
As I continue to recover, I have to remember & realize: that mild-exercise, the only level that I can sustain - is essential in regaining some muscle-tone.
I get in a 1/4-mile or less walk, most days. However, some sort of daily resistance training - is also needed, even just mild calesthenics.
- Ross
Thanks to everyone, for this post and the other posts, addressing the need for exercise of some sort. The discussion has been just the sort of reminder that I have needed. I'm not flat on my back in a hospital bed anymore. And I need to make a better effort.
In the past year, I have been going on lots of walks, and when I feel good (which is most of the time now) I go running. And then things like pushups and strength training. I don't push myself too hard if I start to feel tired or have trouble breathing, but getting even a little exercise makes me feel great, usually. I think the days when I'm the most tired and crappy-feeling are when I have to sit still all day at work.
I adjust it when I can because I do not have as much balance, but I found the more I do it, the easier it becomes.
It gives lots of breaks which is something that I need. AND SHOCKINGLY, I feel pretty good after. Now I am scared to stop working out :(.
Hope this helps.
The water gives me support. The Y has water arobic classes and stretch classes. It has really helped me. There was a time exercise made me worse. Now it makes me better. Hard line. 5 days too much. I swim 3 days a week and I am good.
Good luck
Aerobics: a series of strenuous exercises which help convert fats, sugars, and starches into aches, pains, and cramps.
-Unknown
If your dog is fat, you're not getting enough exercise.
-Unknown
I have to exercise in the morning before my brain figures out what I'm doing.
-Marsha Doble
Walking can add time to your life. This enables you at 89 years old to spend an additional 5 months in a nursing home at $7000 per month.
Have a nice day.
Al