Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I know that MG is different for every single person, but I was wondering how everyone deals with the fatigue.
Are there any supplements or vitamins that seem to help?
Any perscriptions?
Foods?
Secret tricks that will give me the energy of the bionic woman? lol
Thanks in advance!
Sheri
Are there any supplements or vitamins that seem to help?
Any perscriptions?
Foods?
Secret tricks that will give me the energy of the bionic woman? lol
Thanks in advance!
Sheri
Gayle
When I was high doses of prednisone, it seemed I was more ambitious, restless and accomplished a great deal more (while barely sleeping at night). Now that I have tapered back, the fatigue is much more noticeable and more of the MG has come back.
Maybe we just need some "bennies" -- I think that is what they used to call the pep pills. Caffeine does help me too. Sort of a game of trying to get boosted in the morning and relaxed in the evening. Luckily as a retired computer guy, i consider a day just working on the computer books, history websites, and other volunteer support I do as a productive day. Just need to have enough relief from MG to keep my fingers productive.
To clean up and dress uo to go out. Sweats and pj pants the outfit of the day. I decided io have French toast today and could not clean it up had to sit down. Took a shower and was barely able to dry off and dress. Let hair dry on it's own and laid down. I never feel any better than that. So many of you work etc. What's wrong with me?
Rosie