Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello all! I had my first plasmapheresis last Thursday. It made me extremely nauseous, but I was better by evening. I had another one today, a bit nauseous but nothing like last week. I was exhausted by the time I got home, so I slept all afternoon. I haven't seen much improvement, especially when it comes to breathing. My breathing is still not good at all. In the evenings I feel like I am gasping for air...urgg! Tomorrow I will make an appt for my sleep study then I have an appt on Nov 6 for the results.
I would like to know what has helped any of you get your breathing under control? I will take all suggestions, I hate always feeling winded.
Hope you are all having a great week!
Karla
I would like to know what has helped any of you get your breathing under control? I will take all suggestions, I hate always feeling winded.
Hope you are all having a great week!
Karla
I don't have any answers yet, as I still new to MG and working on getting an official diagnosis and further treatment. My neuro is considering plasmapheresis and I'm anxious about it as I don't know what to expect. I'm not sure how I feel about it, it seems scary having to get the blood/plasma exchanged for however long or the rest of our lives. What are the pros/cons of plasmapheresis? Risks vs benefits? How well does it work for people? How long does it last?... I have pretty severe MG symptoms and the respiratory is at the top of my list as a chronic, scary issue. I will be staying tuned to hear how others respond and what info is shared. I am *with you* on the desire to just breathe normally!!! I want to be able to sing normally again. To have a conversation without getting winded and in coughing fits. Is there anything helping you Karla, with the breathing?
Please keep me/us posted on how the plasma goes an also if you care to share more about your experience. I feel I can learn from you as I likely soon to be facing my first plasma...
Wishing you well!
Hugs,
*Aimee*
hugs,
Annette