Yup, I'm on 60 mg/day too. I'm normally crabby, so no one can tell the difference.

BTW, how do you feel your IVIG is holding up? I sometimes think I'm getting a little worse, but it's very subtle and may just be Mestinon timing issues.

I haven't started IVIG yet. They have to get it scheduled and call me. I am just getting antsy about it and not looking forward to any of the treatment.

Deep breaths - if you're like me, you'll feel so much better from the IVIG that you'll be willing to give the pred a try.

OK, thanks. I may need you to keep telling me that. I have all kinds of thoughts running through my head, like, maybe I am not really sick, may be it is just an overactive imagination, or I need to find something to occupy my mind and then I will feel better. Then about that time, something gets stuck swallowing or I have to go sit down because I am too tired from just standing up.......

20 mg a day. Binia I agree with you on the IVIG What a difference.
Will

What I was wondering, How do they decide on what amount to start on a day. Is it just the Dr thoughts or your weight, color of eyes what?
Will

I wondered that too, since it seems dosages vary so greatly. The only other times I have taken it was for stubborn lung infections and that was usually only the 5-6 tapered dose packs. They were horrible. Can't imagine being on it every day.....Usually by the time I am about to take my last dose, I am ready to pull out my last handful of hair.

I started on 20mg Prednisone Jan 3,12 and then was hosp. Put on a vent and got IVIG. Then transferred to another hosp and got PLEX. Sometime along the way I pulled out the vent I was DCed at the end of January on 60 mg prednisone. I feel good. Very much improved. SOB today but that is because the temp is 103* I would say I am 70-80%improved.

It seems that most people are started out on a dose that = 1mg/kg. Just be careful because about 2-3 weeks in - you can actually have worsening of symptoms before they start getting better. Steroids also can take a while to work for this disease. Still puzzling to me...but the immune modulating properties of the drug can take over 2mos..
Definitely irritable! Some of it from lack of sleep from the steroids keeping you up. In a few months you may be able to ask your doc to switch to an every other day dosing. This may help with some of the side effects. Good luck!

I was started on 50 mg a day and about a week later began to experience steroid-induced weakness. I was then cut back to 20 mg and tapered up weekly until I reached 50. Luckily Curt had warned me about steroid-induced weakness so I knew to call my neuro immediately. Steroid weakness felt like my MG symptoms had gotten three times worse. It wore off after a couple of weeks. It does not happen to everyone, but if you start getting weaker, please call your neuro.

Hi - I started at 60. Tapered through IVIG. Got an infection -- spiraled... starting over at 60...

Hang in there. it makes me irritable too. Pay attention to eye sight as i had a cataract bloom very quickly at this dose and have a opthalmologist tracking it.

Take Care
Barb

I'm one that chose not to take the steroid route so I can't help you there. My neuro is okay with my choice of no predni as long as my symptoms can be controlled other ways. I did IVIG for a year and now doing plasmapheresis. They both work well. I've tried a couple of immune suppressants (tacrolimus and cellcept)

~sherry

I have generalised MG.
I have never taken Prednisone.

My hope for anyone is that once you have started it, that at some point you will be able to get off of it.

Best wishes for peace,

TJ

My neuro started me at 10mg prednisone and slowly worked up to 25mg over 7 weeks. this dose worked great for me and after 2 months she slowly weaned me back down to 10mg (for a maintenance dose) over 3 months.

She started me off at a low dose because i am very small boned, she was concerned causing more harm than good. At 25mg i had weight gain, blood sugar went up and so did the pressure in my eyes- which was painful. Reasons why she weaned me to more tolerable dose once symptoms were relieved.

I do not get IVIG txs. saving that for future when needed. Oh and I did have emotions all over the place too. Good luck with your teatment sounds kinda routine from what others say. We all have our own pace.

My lil one is on predisone she is on 10mg every other day. thats one medication i dread and wish we didnt have to give her. it just makes her moody, cranky, has a hard time sleeping