Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Question

bear57
bear57
About over a month ago I had 5 days of IVIG and I have been getting off the prednisone this is my last week also I was taking imurane but it wasn't agreeing with me so now I am up to 1500 mg of cellcept a day now within the last 3 days I started that. So my question is I feel like my syptoms are getting worse has anyone experienced this from trying all of this in a short time or is the disease doing it's little thing. I am not going to call the doctor as of yet I want to wait and see if it is just another side effect and what responses I hear from ya'LL. I am from Kentucky dang gum it oh and I always did like Howdy and lets not forget Ya Reckon sorry that was my Bi-polar speaking. Life is just a bunch of reality checks isn't it.

Thanks Ya'll
Bear
annkemp
annkemp
way too many things at once.
I would say you are suffering from the prednisone drop. It can be a killer.
Did you discuss all these changes with us first, Ha Just kidding
But the drops can be killers.
We have to be careful not to do too many variables at once or we can't determine the problem.
How much predisone were you on and how fast and how much are you dropping?
I suffered way too many times till I learned slow and small drops save the day.
The predisone drops feel like MG until your body adjusts. Usually I make it if I buck it out but on one drop I did have to go back up because after 2 weeks I began to feel breathing.
Keep us posted
Hoepfully you can buck it out.
Ann
also sometimes our body can react to a drop from weeeks before.
bear57
bear57
Ann, I was taking 20 mg a day then it was 10 MG a day for one month then 5 mg dailey for two weeks this is my last week . Guess it could be that or all that whiskey and beer I am taking with it, HA HA just kidding that was a joke have to laugh at something.

Thank you good thought
revelationman1911
revelationman1911
HEY FRFIEND.....IVE BEEN ON 1000MG OF CELLCEPT FOR THE LAST 1-1/2 MONTHS,,,,SO FAR NO SIDE AFFECTS,,,I DO NEED TO GO HAVE A BLOOD WORK UP DONE IN THE NEXT WEEK OR SO..I DO TAKE PREDNISONE WHEN I NEED IT TO HELP ME GET THROUGH A TOUGH DAY,,,BUT I WILL TRY TO STAY OFF IT AS LONG AS POSSIBLE. SO IM NOT FAMILIAR WITH ALL THE BAD THINGS OF THE PREDNISONE, BUT CELLCEPT HAS BEEN AGREEING WITH ME SO FAR...SOUNDS LIKE ANN MIGHT HAVE THE ANSWER FOR YOU ...TAKE CARE MY FRIEND

TERRY..FROM THE LONE STAR STATE
bweeds
bweeds
It takes a while for the CellCept to kick in and the IVIg may be wearing off. That is a pretty rapid prednisone drop, I couldn't, didn't handle it. I was dropping every other day and when I got to 20/5 and the summer, I had to go back up to 20/10. I am at 20/7.5 now. It is hard to face going up after you have managed to get down on the prednisone.

Maybe talk to your neuro about another course of IVIg to tide you over or a slower prednisone drop, it would probably depend on the symptoms you are having. My neurologist was not bothered by the fatigue (I was), but the double vision was coming back as well. b.