Good morning Bear, at least I hope it's a good or better morning for you. Can you be more specific about how you are feeling? What kind of sick? Are you having fever and a headache?

I tend to feel worse after ivig for a couple of days. I only get one day of infusion every three weeks. I rarely get a huge bump from ivig but can definitely see an improvement and can tell when it is time for ivig again.
Cathi

I am feeling better this morning they told me to expect a headache and neck stiff, sweats and fever some of it could be the medicine. They are taking me off prenisone and I am going on Imuran. 2 month tapering down on that. Guess nobody knows what really to expect having MG sure is a wild ride. I have two more treatments this week then guess wait and see. I talked to a girl Friday when I was in there she had MG and she said the same thing as you she could tell when it was time for another IVIG.

I HOPE ALL THE CRAPPY SICK FEELINGS YOU ARE HAVING QUICKLY PASS FOR YOU,......AND THAT YOU HAVE A GREAT DAY TODAY......

TERRY....
BLESSINGS TO YA........

I have received IVIG two days a week, every other week and while I don't see a hugh improvement I do feel quite better. I find they day after I feel very flu like. The results are usually felt thee or four days later.

Bear,
so glad to hear you are feeling better this am.. When I was taking IVIG I was getting it every 2 weeks gosh, I think that was it... my memory fails me.

After the first initial doses how often will you have ivig?

Hope you have a resful day.
Annette

Yea that is what it felt like you feel pretty good then all of a sudden you feel you have the flu. So far this morning just neck discomfort but feeling alright of course it is early. Thank you all for replying, I am so excited to see what happens next! Hope you all have a good day too.

Annette, they really haven't said anything about after except I would feel better for a few weeks. I guess they are waiting to see what this does. She wanted to look all of my records over from what she said Friday. She is a new neuro I got a second opinion on so far I am happy with them they seem to care.

I often feel badly for almost a week after getting ivig, I get three days for a total of 150 grams. I get the flu feeling, stiff neck and headache. Almost a week from the last day of ivig I suddenly feel it kick in. Hope your feeling better now.

Each treatment has been just a little bit different for me. I believe my first dose took about 4-5 days before I felt it really getting nice for me.
Once I felt it the night of treatment, but it usually kicks in around 5-7 days! Stay hydrated!
I am trying to decide if the bigger the side effects the night of treatment (headache, fever) give me the best relief , so far it seems true... but I don't now for certain.
Love, Becca

Well Becca if it is how many side affects you have I am cured and MG has left my body these last two days I have been miserable. You made me laugh that made me feel better knowing I am not feeling all this for nothing. I still have two more days this week of this not sure where I go from here.
Is hydration a big part of not feeling so bad after treament with this I was more than likely told that but like my wife tells me I never listen and like I keep telling her I have a married ear and a single ear usally she is talking to my single ear and it don't hear a word she is saying.?

Bear,
you so made me giggle about the married ear and single ear... I could so hear my husband telling me that. I always say he has selective hearing... only when it benefits him... lol

You will find with IVIG at least for me sometimes it did not bother me sometimes it did. I only had a few times of the bad headach etc. Just be sure drink lots of water starting a few days before and drink the day of..

Don't you just love the mg roller coaster ride... NOT but all we can do it make the best of it.. keep on keepin on
hugs
Annette

Bear,
Hope this treatment gets you feeling stronger sooner that later.

Don't know if you are on facebook. If you are, there is a IVIG page called--
IVIG Patient & Provider Support Room

(don't know if you need to join it or not. Probably so since it would be a private page) There are many on that have been receiving IVIG for years for different conditions---very helpful when needed.

Be sure to keep drinking lots of water for a week after treatment ends.

hugs
sherry

I will just throw in my experience so far...I have had 2 months of IVIG; my 3rd month treatment is this Thursday and Saturday. The first month I did 40 grams each day for two days (about 5 hours each day) I got a terrible migraine the evening of the last day...it lasted about 4 days but was some what tolerable. The second month I had 80 grams over 2 days about 8 hours each day...the migraine came two days later and was so bad I slept for about 24 hours and still ended up being taken to ER because I could not function....They are trying to put a day in the middle and see if that works and slow down the infusion...so we will see. As for feeling better, the muscle strength and all around good feeling came for me about a week after treatment....and it was amazing good feelings and I felt like a new person. Well it seems to only last a short time, as I have been back to sore/exhausted limbs the last few days (I am also having big difficulties with my Mestinon - not knowing how much to take each time...it changes for me all the time, sometimes I need 90 mg then 4 hours later I might need 90 or I might need 30 and if I take too much, I am in big trouble.) I was taken off Imuran as my WBC kept dropping super low after IVIG...so not sure what I can do about that now....just wait and see I guess.

I hope things work out for you Bear!!!!

Darci from Chicago