Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
If you feel lousy about everyday and as your walking to your truck from work you start feeling like breaking down because your so tired and you feel weak does that mean you are getting worse I started with Ocular and it is better just don't feel like doing hardly nothing anymore. I am not sure if it is the heat the disease, medicine or maybe just my hair color if I had any. I usally feel bad at the end of the day. I have got to were I don't say much at work I talk to you all more than them at least you understand to them I don't even look sick. The doctor gave me some medicine to try and calm my hand shaking and help me sleep I slept and it helped the hand shaking. But when I woke up at night all I did then was walk around the house bumping into walls and using the restroom oh yea fell down and knocked pictures off the wall sure was funny when I think about it. Reminded me of some parties I use to go to. I go to the doctor Friday and yes I'm writing this down I'll have to make some jokes. I guess I am wondering what is around the corner. I have always taken care of me and mine and if someone breaks in the house or my wife needs me I want to be able to handle it. Well Friday will be a interesting day either I won't hear nothing different or I'll hear the same or the doctor may laugh at a few of my jokes who knows. I do get tired of hearing them tell me it looks good, when I feel lousey and I tell them I feel lousey it is like it goes right over their heads. I guess I am like all of you I want to feel good just oneday but things could be worse, my problem is I remember when they were better. Well thank you for listening it has been a good day can't you tell.
Take care. Gez
It certainly sounds like you need more help with medication. I don't know what time your doctor visit is, but it won't be after a hard days work. Don't tell your doc you feel lousy, tell him you fell and knocked pictures off the wall. tell him if your legs won't do what you tell them to do, are you having trouble brushing your teeth at night, or sitting straight at the table, or going upstairs, or washing your head and whatever hair you have.
Tell him what you cannot do that you could. Someone wanted to chew gum and couldn't. Tell him what you want to be able to do, like take care of your family at night and you can't even walk straight to the bathroom because . . .Lots of people feel lousy especially in the heat and when they are working hard, but your lousy is special and the doctor needs to know the particulars. This will give both him and you a way to judge your progress or lack of progress. It will tell him more about where to look for trouble.
While we hope your occular MG is not generalizing, I think we all have a pretty good notion that it is. Better to get it treated early if that is what is going on. Also autoimmune diseases tend to run together and my doctor told me to have my thyroid checked every six months. That is something else to consider--along with just getting to feel better and I hope it is soon.
hugs, b.
Good Luck. I know how you feel.
Tomorrow's gonna be a fresh new day. Maybe you'll feel better. And if not? Then we'll be here expecting another post.
BEAR HUGS!
Tricia
maybe not perfect but better
Take care
Ann
We are all glad you are here and let us know how you are doing.. we have all been there or are there now... We just learn to take the good with the bad days, we dont; like it but..... keep on keepin on.
Here's to a great appt on Friday, let us know how it goes.
hugs,
Annette
We haveall been there one way or another,so we understand what you are going through.It will get better.I hope friday comes quicly for you.
Lorraine
Let us know how it goes. You've struck a chord with all of us. We do understand.
Cathi
Spell it out to the doc tomorrow, don't feel rushed, ask lots of questions and let us know how it goes.....yes sir, we sure get it!
All the best to you.
Larissa