Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello- I am writing to get your opinion. I have Lupus. In March I was at my doctor for a check up. Everything was stable. I was feeling okay. The very next day I started in with a cold. After that i started with muscle tightness, weakness in thighs and upper arms. It feels as though I am running a marathon and pulling my muscles. I have fatigue that makes me fall asleep sitting up. I have had trouble swallowing off and on for about a year, however in these pasts months have had trouble swallowing and even got food stuck in my throat 3 times! At night it feels like I am drowning when I lay down. I can't catch my breathe. I have to lay on my side and elevated. I have no trouble walking, and no other eye trouble except drooping. I do feel more car sickness and dizzy in the car. My blood work for muscle enzyme is normal. The MG receptor test has not been done yet. I have had a droopy eyelid since I was young. Especially when I am tired. This has been going on since March and I have had about 1 week off with it. My lupus doctor ordered an NCT/EMG which was normal. Any thoughts? Just feeling kind of lost. :-( Thank you so much!
You could even go to er at hospital where mg experts are. They will help.
When you check in just tell them you are having breathing issues and have mg and they take this very very seriously .
Getting the proper diagnosis and than the proper medications and treatment plan is important as you know. You should in my opinion seek out a specialist as the others have mentioned .
The breathing issues can be serious so don't procrastinate in any way as if you have mg it can exasperate other symptoms.
Cj