I don't think it's typical.... but I will say I sometimes have a little difficulty depending on how I sleep. If I don't sleep well, my MG symtoms are present in the morning. If I sleep well, I feel "normal" in the morning. So, for me, if I didn't get much sleep, my right eye is droopy and is hard to open.

I really believe it effects us all so different. My neck is an issue lately. If I take my mestinon early in the morning (like 5 or 6) then go back to bed , then when I get up the symptoms arent as bad.
Maybe that will help.
Ann

Many mornings my eyes are quite swollen, but I can still open them. My left eye sags all the time, but when they swell my right eye swells more. However, it takes awhile before I can focus in the morning. There is a previous discussion about the eyes and other have mentioned the same as myself. At least the part about not being able to focus. Like Ann said we are all different and how it manifests itself in each of us is different.
Cathy

Sumdra,
what did you mean mg symptoms are present? I hope you don't mind me asking, Im still learning, and like someone said before each day if different. Yesterday and today I feel like I have a golf ball in my throat, hard to swallow. Sleep surely is good, but lately I havent been sleeping too good.

Hi TaraU!
Don't worry about sounding repetitive here... clarity is a beautiful thing! When I was on mestinon only it would often take my second dose of the day to get my eyes to fully open comfortably.
Focus on what is normal for you and what works for you... none of us are completely "typical" but can relate on one level or another!
My left usually has more issue than my right, but it has been the opposite a couple of times and other times they are both being naughty!
I am glad you are here and I am here for you as well! Welcome to our group, I hope you find it as priceless as I have!
Love, Becca

Tara, the most telling thing about whether your eye problems are related to MG would be placing an ice pack on them when it starts In the evening and seeing if it responds, or how they responded to Mestinon when you took it. There is no straight answer to is it or is it not, because we are so different. I am beginning to notice that a number of the people here with the worst eye problems in the morning are those who also have the autoimmune thyroid disease. My neuro ophthalmologist said that eye problems in the morning were more typical of thyroid disease and those at night myasthenia. You have both. If you have other problems so that there is swelling in your feet at night, you may find it in your face in the morning, especially if you sleep on your side or your tummy. When I was taking calcium channel blockers for high blood pressure (a MG no no) that was very noticeable. Neurologists who have a limited experience with MG, expect us to conform to the textbook, but unfortunately our bodies don 't read textbooks (especially with eye problems) and behave anyway they chose. It's part of the frustration that comes with the disease. b.

TaraU,

I have eye problems in the morning. I started a topic "eyes in the morning" and there was a good discussion about the topic. I agree with bweeds that the ice pack test gives a strong indication of MG and it is very simple to perform. There is some studies that suggest it is very accurate and one leading neurologists believes it to be 99 percent accurate. J

So for the ice pack test, do I just put it in my eye like now when it is starting to droop?? What happens? Thanks for the advice. I went to my neuro today, what a waste. But least I was able to get referred to Boston.

TaraU,

Place the ice pack on the eyes for a minute or two. Your eyes will pop open if you have a positive test, but will return to dropping. This would be a strong indication of MG. The relief is only temporary. J

I have also walked out of my nuero appointment thinking I should ask for my co-pay back (and gas money, and daycare cost) I am sorry to hear the appointment felt like a waste... it can be so frustrating sometimes.
When I did the ice pack test on myself a couple of months ago I had googled "Ice pack test for Myasthenia Gravis" and, like mgsupport suggested, the information I found was to put the ice pack or cold pack on the eye for 1 or 2 minutes. I found two minutes to be really hard to do (it is COLD). I made it about a minute and a half and when I removed the ice pack my droopy eye was bigger than my non droopy eye!
Now, when I do my makeup and am having droopy eye issues, I put ice on my eye for a minute, then apply my eyeliner. This keeps me from walking around with my eyeliner above my lash level once my eye lifts!
Love, Becca

Oh... and the ice pack is applied to the closed eye lid... please don't put ice IN your eye! :)

My MG symptoms are drooping right side of face (especially my right eyelid), swallowing difficulties, chewing difficult (especially with chewy or hard foods), arm and leg weakness and sometimes i get a delightful sense of shortness of breath.

Becca, thanks for the tip on applying eyeliner. I haven't used eyeliner for a long time because I thought it accentuated my droopy eye. I'm always looking for something to make me look better. I'm not really a vain type person, but it makes me feel better.
Gail