Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I'm thankful for Daily Strength! I have been sick for a long time with a few different things. The latest is MG. After 4 neurologists and 4 years with progressing issues, we finally have a DX! My neuro-opthamologist is the one who put the pieces together. Now, granted, the swallowing, breathing, and eye droop only came in the last six months Still. I have had overall weakness, slurring, eye blurs, and other signs for years. It seems like my symptoms went out of order?!
I'm on Mestinon now and after almost two weeks on it, I can do things I haven't been able to do in years. I did my first sit up in years!
My PT will be shocked when I see him again. I can hardly wait to show him what the Mestinon is doing.
Family is supportive.
Extended family thinks this is a cure and I'm just fine.
For now, while on meds, yes. When they wear off, my tongue
is heavy, I am winded, I can no longer climb the stairs without much
stress, etc..
I've been told that they are relieved it is not serious.
I'm glad I can live a normal lifespan too. A normal life?
As normal as the meds allow. :)
Grateful for the meds and the support that I know I will have here.
Thanks for listening,
Carly
I'm on Mestinon now and after almost two weeks on it, I can do things I haven't been able to do in years. I did my first sit up in years!
My PT will be shocked when I see him again. I can hardly wait to show him what the Mestinon is doing.
Family is supportive.
Extended family thinks this is a cure and I'm just fine.
For now, while on meds, yes. When they wear off, my tongue
is heavy, I am winded, I can no longer climb the stairs without much
stress, etc..
I've been told that they are relieved it is not serious.
I'm glad I can live a normal lifespan too. A normal life?
As normal as the meds allow. :)
Grateful for the meds and the support that I know I will have here.
Thanks for listening,
Carly
You need to keep on eye on your symptoms as many of us progress. Treatment may be required for you. I remember the great feeling I had after my first mestinon and thinking this is what I searched for. I tried to go at it with mestinon alone, but after four months of deteriorating on mestinon only I had to get treatment.
If you consistently need more mestinon to cope and/or your symptoms get worse over time, you need treatment.
I hope you can go at it with mestinon alone...Good luck
TJ
I also stressed the time of day really makes a difference for me. When I get good sleep the mornings are easier for me then afternoons.
I also had weakness for a number of years before I recently got mestinon and it has made so much difference. I hope your course is not complicated but for sure you can get answers here as many have much experience with different types of treatment.
Again Welcome! Marie